Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology

被引:372
作者
Jaarsma, Tiny [1 ]
Beattie, James M. [1 ]
Ryder, Mary [1 ]
Rutten, Frans H. [1 ]
McDonagh, Theresa [1 ]
Mohacsi, Paul [1 ]
Murray, Scott A. [1 ]
Grodzicki, Thomas [1 ]
Bergh, Ingrid [1 ]
Metra, Marco [1 ]
Ekman, Inger [1 ]
Angermann, Christiane [1 ]
Leventhal, Marcia [1 ]
Pitsis, Antonis [1 ]
Anker, Stefan D. [1 ]
Gavazzi, Antonello [1 ]
Ponikowski, Piotr [1 ]
Dickstein, Kenneth [1 ]
Delacretaz, Etienne [1 ]
Blue, Lynda [1 ]
Strasser, Florian [1 ]
McMurray, John [1 ]
机构
[1] Univ Groningen, Univ Med Ctr Groningen, Dept Cardiol, NL-9700 RB Groningen, Netherlands
关键词
Heart failure; Palliative care; QUALITY-OF-LIFE; ELDERLY-PATIENTS; LUNG TRANSPLANTATION; AMBULATORY PATIENTS; CLINICAL-OUTCOMES; END; OLDER; COMMUNICATION; MANAGEMENT; DEPRESSION;
D O I
10.1093/eurjhf/hfp041
中图分类号
R5 [内科学];
学科分类号
100201 [内科学];
摘要
Heart failure is a serious condition and equivalent to malignant disease in terms of symptom burden and mortality. At this moment only a comparatively small number of heart failure patients receive specialist palliative care. Heart failure patients may have generic palliative care needs, such as refractory multifaceted symptoms, communication and decision making issues and the requirement for family support. The Advanced Heart Failure Study Group of the Heart Failure Association of the European Society of Cardiology organized a workshop to address the issue of palliative care in heart failure to increase awareness of the need for palliative care. Additional objectives included improving the accessibility and quality of palliative care for heart failure patients and promoting the development of heart failure-orientated palliative care services across Europe. This document represents a synthesis of the presentations and discussion during the workshop and describes recommendations in the area of delivery of quality care to patients and families, education, treatment coordination, research and policy.
引用
收藏
页码:433 / 443
页数:11
相关论文
共 82 条
[1]
Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure [J].
Allen, Larry A. ;
Yager, Jonathan E. ;
Funk, Michele Jonsson ;
Levy, Wayne C. ;
Tulsky, James A. ;
Bowers, Margaret T. ;
Dodson, Gwen C. ;
O'Connor, Christopher M. ;
Felker, G. Michael .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2008, 299 (21) :2533-2542
[2]
[Anonymous], 2009, WHO Definition of palliative care
[3]
Communication about cancer near the end of life [J].
Back, Anthony L. ;
Anderson, Wendy G. ;
Bunch, Lynn ;
Marr, Lisa A. ;
Wallace, James A. ;
Yang, Holly B. ;
Arnold, Robert M. .
CANCER, 2008, 113 (07) :1897-1910
[4]
BEATTIE J, 2008, SUPPORTIVE CARE HEAR
[5]
Beattie JM, 2007, IMPLANTABLE CARDIOVE
[6]
Defining the role of palliative care in older adults with heart failure [J].
Bekelman, David B. ;
Hutt, Evelyn ;
Masoudi, Frederick A. ;
Kutner, Jean S. ;
Rumsfeld, John S. .
INTERNATIONAL JOURNAL OF CARDIOLOGY, 2008, 125 (02) :183-190
[7]
Spiritual well-being and depression in patients with heart failure [J].
Bekelman, David B. ;
Dy, Sydney M. ;
Becker, Diane M. ;
Wittstein, Ilan S. ;
Hendricks, Danetta E. ;
Yamashita, Traci E. ;
Gottlieb, Sheldon H. .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2007, 22 (04) :470-477
[8]
Symptom distress and quality of life in patients with advanced congestive heart failure [J].
Blinderman, Craig D. ;
Hornel, Peter ;
Billings, J. Andrew ;
Portenoy, Russell K. ;
Tennstedt, Sharon L. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2008, 35 (06) :594-603
[9]
Living with advanced heart failure: a prospective, of patients and their carers based study community [J].
Boyd, KJ ;
Murray, SA ;
Kendall, M ;
Worth, A ;
Benton, TF ;
Clausen, H .
EUROPEAN JOURNAL OF HEART FAILURE, 2004, 6 (05) :585-591
[10]
Brannstrom Margareta, 2006, Eur J Cardiovasc Nurs, V5, P295, DOI 10.1016/j.ejcnurse.2006.01.006