Factors influencing the beliefs of patients with rheumatoid arthritis regarding disease-modifying medication

被引:62
作者
Goodacre, LJ [1 ]
Goodacre, JA [1 ]
机构
[1] Univ Cent Lancashire, Lancashire Postgrad Sch Med & Hlth, Chron Dis & Rehabil Interdisciplinary Res & Teach, Preston PR1 2HE, Lancs, England
关键词
beliefs; decision-making; medication; rheumatoid arthritis;
D O I
10.1093/rheumatology/keh116
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective. To investigate factors influencing the beliefs of patients with rheumatoid arthritis (RA) regarding disease-modifying medication. Method. Twenty-nine patients with RA either starting a disease-modifying anti-rheumatic drug (DMARD) for the first time or changing DMARD were recruited. Semi-structured interviews, activity diaries and focus groups were conducted over 9 months. A coding framework was developed and data analysed using the constant comparative method to identify key themes. Results. DMARDs were perceived as central to the management of RA but strong concerns were expressed about potential long-term effects. Beliefs about DMARDs were informed by material from a wide range of sources. Judgements of efficacy were influenced by symptom relief, occurrence of side-effects and perception of alternative treatment options. Perception, reporting and tolerance of side-effects differed widely between individuals. The emotional impact of starting and being withdrawn from medication appeared stronger in people with more experience of DMARD use. Conclusions. Patients have complex and evolving belief systems relating to DMARDs. Understanding these systems will facilitate the provision of appropriate information and effective support not only in decision-making about treatment but also in relation to discontinuing treatment.
引用
收藏
页码:583 / 586
页数:4
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