Quality of life in psoriasis patients

被引:94
作者
Augustin, Matthias [1 ]
Radtke, Marc Alexander [1 ,2 ]
机构
[1] Univ Med Ctr Hamburg Eppendorf, Inst Hlth Serv Res Dermatol & Nursing IVDP, D-20246 Hamburg, Germany
[2] Hamburg Dermatol, Hamburg, Germany
关键词
cumulative life course impairment; disease burden; psoriasis; quality of life; stigmatization; TREATMENT GOALS; TREATMENT SATISFACTION; ILLNESS PERCEPTIONS; PRACTICE GUIDELINE; JOINT COMPLAINTS; PLAQUE PSORIASIS; ECONOMIC-IMPACT; HEALTH-CARE; PREVALENCE; ARTHRITIS;
D O I
10.1586/14737167.2014.914437
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
100404 [儿少卫生与妇幼保健学];
摘要
Patient-reported outcomes are major components of decision making in clinical research, reimbursement, health policy and health care for psoriasis. The most important construct in patient-reported outcomes is health-related quality of life (HRQoL) which encompasses the individual's well-being with respect to health. HRQoL cannot directly be measured but is assessed in single dimensions, especially physical, emotional, social and functional aspects. For this, disease-and condition-specific instruments are used. Psoriasis is a chronic inflammatory disease affecting the skin as well as other tissues and organ systems. Patients suffer from a large scale of impairments, for example, physical symptoms, stigmatization and embarrassment, psychological strain and disabilities in profession. Improvement of HRQoL is a major objective of disease management. Current knowledge on determinants of HRQoL and the treatments available increase QoL in clinical care.
引用
收藏
页码:559 / 568
页数:10
相关论文
共 97 条
[1]
Impact of psoriasis on quality of life in Iran [J].
Aghaei, Shahin ;
Moradi, Ahmad ;
Ardekani, Gholamreza Safaee .
INDIAN JOURNAL OF DERMATOLOGY VENEREOLOGY & LEPROLOGY, 2009, 75 (02) :220
[2]
Patients' perspective of pruritus in chronic plaque psoriasis: a questionnaire-based study [J].
Amatya, B. ;
Wennersten, G. ;
Nordlind, K. .
JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2008, 22 (07) :822-826
[3]
Disease severity, quality of life and health care in plaque-type psoriasis:: A multicenter cross-sectional study in Germany [J].
Augustin, M. ;
Krueger, K. ;
Radtke, M. A. ;
Schwippl, I. ;
Reich, K. .
DERMATOLOGY, 2008, 216 (04) :366-372
[4]
Augustin M, 1999, HAUTARZT, V50, P715, DOI 10.1007/s001050051056
[5]
A framework for improving the quality of care for people with psoriasis [J].
Augustin, M. ;
Alvaro-Gracia, J. M. ;
Bagot, M. ;
Hillmann, O. ;
van de Kerkhof, P. C. M. ;
Kobelt, G. ;
Maccarone, M. ;
Naldi, L. ;
Schellekens, H. .
JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY, 2012, 26 :1-16
[6]
Adherence in the Treatment of Psoriasis: A Systematic Review [J].
Augustin, M. ;
Holland, B. ;
Dartsch, D. ;
Langenbruch, A. ;
Radtke, M. A. .
DERMATOLOGY, 2011, 222 (04) :363-374
[7]
Nail psoriasis in Germany: epidemiology and burden of disease [J].
Augustin, M. ;
Reich, K. ;
Blome, C. ;
Schaefer, I. ;
Laass, A. ;
Radtke, M. A. .
BRITISH JOURNAL OF DERMATOLOGY, 2010, 163 (03) :580-585
[8]
Health Services Research in Psoriasis - The German Approach [J].
Augustin, M. ;
Reich, K. ;
Reusch, M. ;
Luger, T. ;
Franzke, N. ;
Schaefer, I. ;
Rustenbach, S. J. ;
Radtke, M. A. .
DERMATOLOGY, 2009, 218 (04) :293-301
[9]
Quality of psoriasis care in Germany -: results of the national study PsoHealth 2007 [J].
Augustin, Matthias ;
Reich, Kristian ;
Reich, Christine ;
Purwins, Sandra ;
Rustenbach, Stephan Jeff ;
Schaefer, Ines ;
Radtke, Marc .
JOURNAL DER DEUTSCHEN DERMATOLOGISCHEN GESELLSCHAFT, 2008, 6 (08) :640-646
[10]
Augustin M, 2013, CURR PROBL DERMATOL, V44, P74, DOI 10.1159/000350555