Social challenges of visible scarring after severe burn: A qualitative analysis

被引:75
作者
Martin, Lisa [1 ]
Byrnes, Michelle [2 ]
McGarry, Sarah [3 ,4 ]
Rea, Suzanne [1 ,3 ,4 ]
Wood, Fiona [1 ,3 ,4 ]
机构
[1] Univ Western Australia, Burn Injury Res Unit, 35 Stirling Highway, Crawley, WA 6009, Australia
[2] Univ Western Australia, Clin Psychol Res Unit, Western Australian Neurosci Res Inst, QEII Med Ctr, Level 4,A Block, Nedlands, WA 6009, Australia
[3] MNH B Main Hosp, Fiona Stanley Hosp, Fiona Wood Fdn, Burns Unit, Level 4,102-118 Murdoch Dr, Murdoch, WA 6150, Australia
[4] MNH B Main Hosp, Fiona Stanley Hosp, Burn Serv Western Australia, Burns Unit, Level 4,102-118 Murdoch Dr, Murdoch, WA 6150, Australia
关键词
Burn; Posttraumatic growth; Social; Visible scarring; Coping; Interpersonal relationships; POSTTRAUMATIC GROWTH INVENTORY; SELF-EFFICACY; ADULTS; DISFIGUREMENT; INJURIES; STRESS; HEALTH; IMPACT;
D O I
10.1016/j.burns.2016.07.027
中图分类号
R4 [临床医学];
学科分类号
100218 [急诊医学];
摘要
Introduction: Visible scarring after burn causes social challenges which impact on interpersonal connection. These have health impacts which may worsen outcomes for burn patients and reduce the potential for posttraumatic growth (PTG). Aim: The aim of the study was to investigate adult burn survivors' experiences of interpersonal relationships as potential barriers to posttraumatic recovery following hand or face burns. Method: This qualitative study explored patient experiences of interpersonal situations. A purposive sample (n = 16) who had visible burn scarring were interviewed more than two years after their burn. Results: Emotional barriers included the fear of rejection, feelings of self-consciousness, embarrassment and humiliation. Situational barriers included inquisitive questions, comments and behaviours of others. Responses depended on the relationship with the person, how they were asked and the social situation. Active coping strategies included positive reframing, humour, changing the self, and pre-empting questions. Avoidant coping strategies included avoidance of eye contact, closed body language, hiding scars, and learning to shut down conversations. Conclusion: Emotional and situational barriers reduced social connection and avoidant coping strategies reduced the interaction of people with burns with others. Active coping strategies need to be taught to assist with social reintegration. This highlights the need for peer support, family support and education, and social skills training. (C) 2016 Elsevier Ltd and ISBI. All rights reserved.
引用
收藏
页码:76 / 83
页数:8
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