Communal discourse as a supplement to informed consent for genetic research

被引:34
作者
Foster, MW
Eisenbraun, AJ
Carter, TH
机构
[1] OKLAHOMA ONCOL INC, TULSA, OK 74104 USA
[2] UNIV OKLAHOMA, HLTH SCI CTR, DEPT MED, WILLIAM K WARREN MED RES INST, OKLAHOMA CITY, OK 73190 USA
关键词
D O I
10.1038/ng1197-277
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Genetic technologies present unique problems for the practice of informed consent. They provide information that may affect a study participant's family or kindred, which may be identifiable as an ethnic or locally isolated population. That information may be used to construct adverse perceptions of such identifiable populations, including non-participants who may not have been informed of or consented to the analyses. To address collective implications of genetic research, we describe a process that can supplement individual consent. Our approach engages pre-existing social units in discourses about proposed research. Communal discourses can influence individuals' decisions to participate in research studies.
引用
收藏
页码:277 / 279
页数:3
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