International development of the Parents' index of quality of life in atopic dermatitis (PIQoL-AD)

被引：60

作者：

McKenna, S

Whalley, D

Dewar, AL

Erdman, RAM

Kohlmann, T

Niero, M

Baró, E

Cook, SA

Crickx, B

Frech, F

van Assche, D

机构：

[1] Galen Res, Manchester M15 6SE, Lancs, England

[2] Erasmus Med Ctr, Dept Psychol & Psychotherapy, Rotterdam, Netherlands

[3] Univ Greifswald, D-17487 Greifswald, Germany

[4] Univ Greifswald, D-17487 Greifswald, Germany

[5] Univ Verona, I-37100 Verona, Italy

[6] 3D Hlth Res, Barcelona, Spain

[7] CHU Bichat, AP HP, Paris, France

[8] Univ Paris, F-75252 Paris, France

[9] Novartis Pharma AG, Basel, Switzerland

来源：

QUALITY OF LIFE RESEARCH | 2005年 / 14卷 / 01期

关键词：

atopic dermatitis; eczema; PIQoL-AD; quality of life;

D O I：

10.1007/s11136-004-4231-z

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Objective: The international development of the Parent's Index of Quality of Life in Atopic Dermatitis (PIQoL-AD), a quality of life (QoL) instrument specific to parents of children with atopic dermatitis (AD) is described. Method: The instrument was developed simultaneously in several countries. Its content was derived from 65 qualitative interviews with parents in the UK, Netherlands and Italy. The measure was then produced for the UK, Netherlands, Italy, Germany, France, US and Spain. Field-test interviews were conducted with approximately 20 patients in each country to assess face and content validity. A two time-point survey was conducted with between 45 and 328 parents in each country to finalise the instrument through application of the Rasch model and to evaluate the psychometric properties of the final instrument. Results: Application of the Rasch model to the survey data identified the final 28-item version. All language versions had good item fit, test-retest reliability (above 0.85), internal consistency and promising validity. Conclusions: The PIQoL-AD is a valuable instrument for inclusion in clinical trials and routine clinical practice. It provides distinct and complementary information to that of existing dermatology-specific measures and has been shown to be responsive to changes in QoL in clinical trials.

引用

页码：231 / 241

页数：11

共 38 条

[1]

Papadopoulos L., Bor R., Psychological Approaches to Dermatology, (1999)

[2]

Pauli-Pott U., Darui A., Beckmann D., Infants with atopic dermatitis: Maternal hopelessness, child-rearing attitudes and perceived infant temperament, Psychother Psychosom, 68, pp. 39-45, (1999)

[3]

Finlay A.Y., Quality of life impairment in atopic dermatitis and psoriasis, Clin Exp Perspect Sandimmun Therapy, 2, pp. 10-11, (1992)

[4]

Daud L.R., Garralda M.E., David T.J., Psychosocial adjustment in preschool children with atopic eczema, Arch Dis Child, 69, pp. 670-676, (1993)

[5]

Elliot B.E., Luker K., The experiences of mothers caring for a child with severe atopic eczema, J Clin Nurs, 6, pp. 241-247, (1997)

[6]

Finlay A.Y., Skin disease disability: Measuring its magnitude, Keio J Med, 47, pp. 131-134, (1998)

[7]

Hunt S.M., McKenna S.P., The QLDS: A scale for the measurement of quality of life in depression, Health Policy, 22, pp. 307-319, (1992)

[8]

McKenna S.P., Hunt S.M., A new measure of quality of life in depression: Testing the reliability and construct validity of the QLDS, Health Policy, 22, pp. 321-330, (1992)

[9]

Hunt S.M., McKenna S.P., Doward L.C., Preliminary report on the development of a disease-specific instrument for assessing quality of life of adults with growth hormone deficiency, Acta Endocrinol, 128, 2 SUPPL., pp. 37-40, (1993)

[10]

Holmes S.J., McKenna S.P., Doward L.C., Hunt S.M., Shalet S.M., Development of a questionnaire to assess the quality of life of adults with growth hormone deficiency, Endocrinol Metab, 2, pp. 63-69, (1995)

← 1 2 3 4 →