Surveys to assess satisfaction with end-of-life care: Does timing matter?

被引:51
作者
Casarett, DJ
Crowley, R
Hirschman, KB
机构
[1] Philadelphia Vet Affairs Med Ctr, Ctr Hlth Equ Res & Promot, Philadelphia, PA USA
[2] Univ Penn, Ctr Bioeth, Philadelphia, PA 19104 USA
[3] Div Geriatr, Philadelphia, PA USA
[4] Leonard Davis Inst Hlth Econ, Philadelphia, PA USA
[5] Univ Penn, Sch Social Work, Philadelphia, PA 19104 USA
关键词
hospice; satisfaction; surveys; grief; bereavement; research ethics;
D O I
10.1016/S0885-3924(02)00636-X
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The goals of this study were to determine whether post-death surveys of family members cause more distress if they are administered closer in time to the patient's death, and whether family members are less likely to respond to earlier surveys. Caregivers of hospice patients were randomly assigned to receive a survey at 2 weeks (n = 107) or at 6 weeks (n = 100) after the patient's death. Response rates and self-reported distress experienced in completing the survey were recorded. There were no differences in self-ratings of distress between 2- and 6-week surveys, and response rates were identical (2-week: 54 %; 6-week: 54 %). Distress and response rate do not appear to be influenced by the timing of data collection, even when surveys are administered very soon after death. J Pain Symptom Manage 2003;25:128-132. (C) 2003 U.S.Cancer Pain. Relief Committee. Published by Elsevier Allrights reserved.
引用
收藏
页码:128 / 132
页数:5
相关论文
共 17 条
[1]   After-death interviews with surrogates/bereaved family members: Some issues of validity [J].
Addington-Hall, J ;
McPherson, C .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2001, 22 (03) :784-790
[2]  
ADDINGTON-HALL J M, 1991, Palliative Medicine, V5, P207, DOI 10.1177/026921639100500305
[3]   Family satisfaction with end-of-life care in seriously ill hospitalized adults [J].
Baker, R ;
Wu, AW ;
Teno, JM ;
Kreling, B ;
Damiano, AM ;
Rubin, HR ;
Roach, MJ ;
Wenger, NS ;
Phillips, RS ;
Desbiens, NA ;
Connors, AF ;
Knaus, W ;
Lynn, J .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2000, 48 (05) :S61-S69
[4]   ACCURACY AND COMPLETENESS OF MOTHERS RECALL OF DIARRHEA OCCURRENCE IN PRESCHOOL-CHILDREN IN DEMOGRAPHIC AND HEALTH SURVEYS [J].
BOERMA, JT ;
BLACK, RE ;
SOMMERFELT, AE ;
RUTSTEIN, SO ;
BICEGO, GT .
INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 1991, 20 (04) :1073-1080
[5]   Life after death: A practical approach to grief and bereavement [J].
Casarett, D ;
Kutner, JS ;
Abrahm, J .
ANNALS OF INTERNAL MEDICINE, 2001, 134 (03) :208-215
[6]  
DESHIENS NA, 1996, CRIT CARE MED, V24, P1953
[7]   Retention interval and eyewitness memory for events and personal identifying attributes [J].
Ebbesen, EB ;
Rienick, CB .
JOURNAL OF APPLIED PSYCHOLOGY, 1998, 83 (05) :745-762
[8]   Accuracy of parent mental health service reporting: Results from a reverse record-check study [J].
Fendrich, M ;
Johnson, T ;
Wislar, JS ;
Nageotte, C .
JOURNAL OF THE AMERICAN ACADEMY OF CHILD AND ADOLESCENT PSYCHIATRY, 1999, 38 (02) :147-155
[9]   Assessment of satisfaction with treatment for chronic pain [J].
McCracken, LM ;
Klock, PA ;
Mingay, DJ ;
Asbury, JK ;
Sinclair, DM .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 1997, 14 (05) :292-299
[10]  
*NAT HOSP PALL CAR, 2001, FACTS FIG HOSP CAR A