What are patients' priorities for palliative care research? Focus group study

被引:25
作者
Perkins, P.
Barclay, S.
Booth, S.
机构
[1] Moggerhanger & Hinchingbrooke Hosp, Sue Ryder Care St Johns Hospice, Huntingdon, England
[2] Univ Cambridge, Dept Publ Hlth & Primary Care, Cambridge, England
[3] Addenbrookes Hosp, Dept Palliat Med, Cambridge, England
关键词
focus group; palliative; qualitative; research; user involvement;
D O I
10.1177/0269216307077353
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research - talking with patients,- help for patients and families; oncology, symptoms, medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study.
引用
收藏
页码:219 / 225
页数:7
相关论文
共 19 条
[1]   Research sensitivities to palliative care patients [J].
Addington-Hall, J .
EUROPEAN JOURNAL OF CANCER CARE, 2002, 11 (03) :220-224
[2]   Quantitative impact of including consumers in the scientific review of breast cancer research proposals [J].
Andejeski, Y ;
Bisceglio, IT ;
Dickersin, K ;
Johnson, JE ;
Robinson, SI ;
Smith, HS ;
Visco, FM ;
Rich, IM .
JOURNAL OF WOMENS HEALTH & GENDER-BASED MEDICINE, 2002, 11 (04) :379-388
[3]  
[Anonymous], 2003, QUALITATIVE PSYCHOL
[4]   User and carer participation in research in palliative care [J].
Bradburn, J ;
Maher, J .
PALLIATIVE MEDICINE, 2005, 19 (02) :91-92
[5]  
Brown K, 2006, BRIT J GEN PRACT, V56, P206
[6]  
Dean Ruth A, 2002, Int J Palliat Nurs, V8, P376
[7]   A systematic review of physicians' survival predictions in terminally ill cancer patients [J].
Glare, P ;
Virik, K ;
Jones, M ;
Hudson, M ;
Eychmuller, S ;
Simes, J ;
Christakis, N .
BRITISH MEDICAL JOURNAL, 2003, 327 (7408) :195-198
[8]   Why are trials in palliative care so difficult? [J].
Grande, GE ;
Todd, CJ .
PALLIATIVE MEDICINE, 2000, 14 (01) :69-74
[9]  
HANLEY B, 2005, INVOLVING PUBLIC NHS
[10]   The willingness of palliative care patients to participate in research [J].
Henderson, M ;
Addington-Hall, JM ;
Hotopf, N .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2005, 29 (02) :116-118