Coping with food allergy: Exploring the role of the online support group

被引:73
作者
Coulson, Neil S. [1 ]
Knibb, Rebecca C. [1 ]
机构
[1] Univ Nottingham, Inst Work Hlth & Org, Nottingham NG7 2RQ, England
来源
CYBERPSYCHOLOGY & BEHAVIOR | 2007年 / 10卷 / 01期
关键词
D O I
10.1089/cpb.2006.9978
中图分类号
G2 [信息与知识传播];
学科分类号
05 ; 0503 ;
摘要
The aims of this study were to explore the reasons for participation in an online support group for individuals affected by food allergy, its perceived advantages and disadvantages as well as impact on the relationship with healthcare providers. A total of 32 members of the Food Allergy Survivors Together ( F. A. S. T.) online support group completed an online structured interview and responses were analysed using thematic analysis. Group members identified a range of benefits, including accessibility, receipt of social support as well as guidance on coping strategies. The only disadvantages identified revolved around the accuracy and trust in information exchanged via the group bulletin board. Group participation did appear to impact on relationships with healthcare providers with several members reporting greater empowerment through decision-making, though in contrast some experienced difficulties in discussing their online support experiences and information obtained with their healthcare providers.
引用
收藏
页码:145 / 148
页数:4
相关论文
共 15 条
[1]   Public perception of food allergy [J].
Altman, DR ;
Chiaramonte, LT .
JOURNAL OF ALLERGY AND CLINICAL IMMUNOLOGY, 1996, 97 (06) :1247-1251
[2]  
Boyatzis R. E., 1998, Transforming qualitative information: Thematic analysis and code development
[3]   Receiving social support online: An analysis of a computer-mediated support group for individuals living with irritable bowel syndrome [J].
Coulson, NS .
CYBERPSYCHOLOGY & BEHAVIOR, 2005, 8 (06) :580-584
[4]   Health online and the empowered medical consumer [J].
Ferguson, T .
JOINT COMMISSION JOURNAL ON QUALITY IMPROVEMENT, 1997, 23 (05) :251-257
[5]  
FERGUSON T, 1996, HLTH ONLINE FIND HLT
[6]   Food allergen avoidance - the patient's viewpoint [J].
Gowland, MH .
ALLERGY, 2001, 56 :117-120
[7]  
KLEMM P, 2003, CIN COMPUTERS IN MAY, P136
[8]   The WWW of the World Wide Web: Who, What, and Why? [J].
Powell, John ;
Clarke, Aileen .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2002, 4 (01)
[9]  
Primeau MN, 2000, CLIN EXP ALLERGY, V30, P1135, DOI 10.1046/j.1365-2222.2000.00889.x
[10]  
Sampson HA, 1996, BRIT MED J, V312, P1050