Medicine - Reestablishing the researcher-patient compact

被引:97
作者
Kohane, Isaac S. [1 ]
Mandl, Kenneth D.
Taylor, Patrick L.
Holm, Ingrid A.
Nigrin, Daniel J.
Kunkel, Louis M.
机构
[1] Harvard Univ, Ctr Biomed Informat, Boston, MA 02115 USA
[2] Harvard Univ, Dept Pediat, Boston, MA 02115 USA
[3] Harvard MIT Div Hlth Sci & Technol, Childrens Hosp Informat Program, Cambridge, MA 02139 USA
[4] Childrens Hosp Boston, Howard Hughes Med Inst, Boston, MA 02115 USA
[5] Childrens Hosp Boston, Program Genom, Boston, MA 02115 USA
[6] Childrens Hosp Boston, Off Gen Counsel, Boston, MA 02115 USA
关键词
D O I
10.1126/science.1135489
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
引用
收藏
页码:836 / 837
页数:2
相关论文
共 24 条
  • [1] GenePING: Secure, scalable management of personal genomic data
    Adida, Ben
    Kohane, Isaac S.
    [J]. BMC GENOMICS, 2006, 7 (1)
  • [2] [Anonymous], 1978, BELM REP ETH PRINC G
  • [3] *ASS ACCR HUM RES, 2006, ACCR STAND 11 6A 11
  • [4] DeBor Greg, 2006, J Healthc Inf Manag, V20, P63
  • [5] Impact of a patient-centered, computer-based health information/support system
    Gustafson, DH
    Hawkins, R
    Boberg, E
    Pingree, S
    Serlin, RE
    Graziano, F
    Chan, CL
    [J]. AMERICAN JOURNAL OF PREVENTIVE MEDICINE, 1999, 16 (01) : 1 - 9
  • [6] HALL CT, 2007, SAN FRANCISCO C 0215, pB3
  • [7] The incidentalome - A threat to genomic medicine
    Kohane, IS
    Masys, DR
    Altman, RB
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2006, 296 (02): : 212 - 215
  • [8] Health-information altruists - A potentially critical resource
    Kohane, IS
    Altman, RB
    [J]. NEW ENGLAND JOURNAL OF MEDICINE, 2005, 353 (19) : 2074 - 2077
  • [9] LAST JM, 1991, J CLIN EPIDEMIOL, V44, pS95
  • [10] MARKS HM, PROGR EXPT SCI THERA, V11, P97