Genetic privacy

被引:24
作者
Sankar, P [1 ]
机构
[1] Univ Penn, Ctr Bioeth, Philadelphia, PA 19104 USA
来源
ANNUAL REVIEW OF MEDICINE-SELECTED TOPICS IN THE CLINICAL SCIENCES | 2003年 / 54卷
关键词
genetic testing; medical confidentiality; genetic exceptionalism; duty to warn;
D O I
10.1146/annurev.med.54.101601.152131
中图分类号
R-3 [医学研究方法]; R3 [基础医学];
学科分类号
1001 ;
摘要
During the past 10 years, the number of genetic tests performed more than tripled, and public concern about genetic privacy emerged. The majority of states and the U.S. government have passed regulations protecting genetic information. However, research has shown that concerns about genetic privacy are disproportionate to known instances of information misuse. Beliefs in genetic determinacy explain some of the heightened concern about genetic privacy. Discussion of the debate over genetic testing within families illustrates the most recent response to genetic privacy concerns.
引用
收藏
页码:393 / 407
页数:15
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