Recruitment and retention strategies for longitudinal African American caregiving research: The family caregiving project

被引:51
作者
Dilworth-Anderson, P [1 ]
Williams, SW [1 ]
机构
[1] Univ N Carolina, Chapel Hill, NC 27515 USA
关键词
recruitment strategies for caregiving research; African Amercian; dependent elder care; minority caregiving research; longitudinal caregiving reseach;
D O I
10.1177/0898264304269725
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Objectives: This article provides a detailed discussion, guided by a culturally competent approach, on recruitment and retention strategies used to study caregiving to older dependent elders in African American families. Methods: The study (lasting from 1995 through 2000) included collecting three waves of data, 9 months apart, among 202 caregiving units (containing a maximum of three caregivers per unit). Results: Four key strategies were identified as useful in recruiting and retaining the sample: (a) assigning the same interviewers to communicate with and interview study participants for each wave of data collection, (b) ensuring that all interviewers are knowledgeable of possible family dynamics and social issues within the African American community (e.g., access to health care, income and education issues, and discrimination), (c) providing a mechanism by way of a toll-free number for all participants to contact the project staff at the participant's convenience, and (d) allowing flexibility in scheduling and rescheduling interviews at the participant's convenience. Discussion: Researchers need to acquire knowledge and develop skills that will foster culturally competent approaches when studying diverse cultural groups, which involves incorporating the beliefs, values, and attitudes of a cultural group in every phase of. the research project, from conceptualization to interpretation of findings. Additionally, a genuine interest in, knowledge of, and respect for the population are necessary to help improve participant involvement in longitudinal research among African American caregivers.
引用
收藏
页码:137S / 156S
页数:20
相关论文
共 18 条
[1]  
Bowles J, 1998, J COMP FAM STUD, V29, P337
[2]   A PROSPECTIVE-STUDY OF FUNCTIONAL STATUS AMONG COMMUNITY ELDERS [J].
BRANCH, LG ;
KATZ, S ;
KNIEPMANN, K ;
PAPSIDERO, JA .
AMERICAN JOURNAL OF PUBLIC HEALTH, 1984, 74 (03) :266-268
[3]   When is risk stratification by race or ethnicity justified in medical care? [J].
Chin, MH ;
Humikowski, CA .
ACADEMIC MEDICINE, 2002, 77 (03) :202-208
[4]   Caregivers' attitudes toward their family members' participation in Alzheimer disease research: Implications for recruitment and retention [J].
Connell, CM ;
Shaw, BA ;
Holmes, SB ;
Foster, NL .
ALZHEIMER DISEASE & ASSOCIATED DISORDERS, 2001, 15 (03) :137-145
[5]   The continuing legacy of the Tuskegee Syphilis Study: Considerations for clinical investigation [J].
Corbie-Smith, G .
AMERICAN JOURNAL OF THE MEDICAL SCIENCES, 1999, 317 (01) :5-8
[6]  
CORNONIHUNTLEY J, 1990, ESTABLISHED POPULATI, V2, P1
[7]   Recruitment and retention of African American elders into community-based research: Lessons learned [J].
Dennis, BP ;
Neese, JB .
ARCHIVES OF PSYCHIATRIC NURSING, 2000, 14 (01) :3-11
[8]   The contexts of experiencing emotional distress among family caregivers to elderly African Americans [J].
Dilworth-Anderson, P ;
Williams, SW ;
Cooper, T .
FAMILY RELATIONS, 1999, 48 (04) :391-396
[9]   African Americans' views on research and the Tuskegee Syphilis Study [J].
Freimuth, VS ;
Quinn, SC ;
Thomas, SB ;
Cole, G ;
Zook, E ;
Duncan, T .
SOCIAL SCIENCE & MEDICINE, 2001, 52 (05) :797-808
[10]   Eradicating essentialism from cultural competency education [J].
Fuller, K .
ACADEMIC MEDICINE, 2002, 77 (03) :198-201