Men with prostate cancer: influence of psychological factors on informational needs and decision making

Objectives: Studies indicate that men with prostate cancer (MPC) adopt passive roles in cancer management; however, increasing public awareness of prostate cancer and advocacy by MPC and their allies suggest otherwise. This study looks at the information that is important to MPC; their preferred participation in decision making; and the influence of sociodemographic, disease, and psychological factors on information needs and decision preferences. Method: Consecutive men diagnosed with prostate cancer and attending two tertiary care cancer clinics completed questionnaires on information needs and decision preferences. Questions included demographic information, health and disease status, psychosocial functioning, optimism, and decisional preferences and information preferences for content, type, focus, format, and amount. Results: Questionnaires were completed by 101 MPC. Their mean age was 70 years and most were married and well-educated Over 70% wanted detailed information at all illness stages focusing on their disease, treatment, survival, self-care, and empowerment. Over 60% of MPC wanted shared decision making with their physician. Psychological variables were found to influence information needs but not involvement in decision making. Conclusion: These results represent a challenge to health-care providers for accomodating the informational needs and decision preferences of individual MPC. (C) 2000 Elsevier Science Inc. All rights reserved.