Quality of life measures for dementia

被引：123

作者：

Rebecca E Ready

Brian R Ott

机构：

[1] Dept. of Psychiatry/Human Behavior, Brown Medical School, Providence, RI

[2] Department of Clinical Neurosciences, Brown Medical School Providence, Providence, RI

来源：

Health and Quality of Life Outcomes | / 1卷 / 1期

关键词：

Dementia; Dementia Patient; Dementia Severity; Dementia Care Mapping; Dementia Population;

D O I：

10.1186/1477-7525-1-11

中图分类号：

学科分类号：

摘要：

Over the past 10 years, several instruments developed specifically for the assessment of Quality of Life (QOL) in dementia have been introduced. The goal of the current review is to present, compare, and critique existing QOL measures for dementia populations to assist investigators and clinicians in selecting the optimal inventory for their specific needs. Nine measures are reviewed with a focus on conceptualizations of QOL, psychometric data, targeted patient population, and administration and scoring procedures. Critical discussion and comparison of the instruments is presented after the scales are described individually. Differences in definitions of QOL, assessment procedures, and methods that were used to establish the validity of instruments are highlighted. An important direction for future research on QOL scales for dementia is to establish their responsiveness to change over time. It will also be important to identify factors that affect reports of QOL, determine the how perceived QOL affects decisions regarding the care of dementia patients, and evaluate interventions to increase patient QOL. © 2003 Ready and Ott; licensee BioMed Central Ltd.

引用

页数：9

共 40 条

[1]

Small G.W., Rabins P.V., Barry P.P., Buckholtz N.S., DeKosky S.T., Ferris S.H., Finkel S.I., Gwyther L.P., Khachaturian Z.S., Lebowitz B.D., McRae T.D., Morris J.C., Oakley F., Schneider L.S., Streim J.E., Sunderland T., Teri L.A., Tune L.E., Diagnosis and treatment of Alzheimer disease and related disorders: Consensus statement of the American Association for Geriatric Psychiatry, the Alzheimer's Association, and the American Geriatrics Society, Journal of the American Medical Association, 267,

[2]

Whitehouse P.J., Orgogozo J.M., Becker R.E., Gauthier S., Pontecorvo M., Erzigkeit H., Rogers S., Mohs R.C., Bodick N., Bruno G., Dal-Bianco P., Quality-of-Life assessment in dementia drug development: Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines, Alzheimer Disease and Associated Disorders, 11, pp. 56-60, (1997)

[3]

Lawton M.P., Quality of life in Alzheimer disease, Alzheimer Disease and Associated Disorders, 8 SUPPL. 6, pp. 138-150, (1994)

[4]

Lawton M.P., Assessing quality of life in Alzheimer disease research, Alzheimer Disease and Associated Disorders, 11, SUPPL. 6, pp. 91-99, (1997)

[5]

Lawton M.P., van Haitsma K., Perkinson M., Ruckdeschel K., Observed affect and quality of life in dementia: Further affirmations and problems, Journal of Mental Health and Aging, 5, (1999)

[6]

Demers L., Oremus M., Perrault A., Champoux N., Wolfson C., Review of outcome measurement instruments in Alzheimer's disease drug trials: Psychometric properties of functional and quality of life scales, Journal of Geriatric Psychiatry and Neurology, 13, pp. 170-180, (2000)

[7]

Burgener S., Twigg P., Relationships among caregiver factors and quality of life in care recipients with irreversible dementia, Alzheimer Disease and Associated Disorders, 16, pp. 88-102, (2002)

[8]

Marinus J., Ramaker C., van Hilten J.J., Stiggelbout A.M., Health related quality of life in Parkinson's disease: A systematic review of disease specific instruments, Journal of Neurology Neurosurgery and Psychiatry, 72, pp. 241-248, (2002)

[9]

Novella J.L., Jochum C., Jolly D., Morrone I., Ankri J., Bureau F., Blanchard F., Agreement between patients' and proxies' reports of quality of life in Alzheimer's disease, Quality of Life Research, 10, pp. 443-452, (2001)

[10]

Berlowitz D.R., Du W., Kazis L., Lewis S., Health-related quality of life in nursing home residents: Differences in patient and provider perceptions, Journal of the American Geriatric Society, 43, pp. 799-802, (1995)

← 1 2 3 4 →