Collaboration and trust in healthcare innovation: The eDiaMoND case study

被引:78
作者
Jirotka M. [1 ]
Procter R. [2 ]
Hartswood M. [2 ]
Slack R. [2 ]
Simpson A. [1 ]
Coopmans C. [3 ]
Hinds C. [1 ]
Voss A. [2 ]
机构
[1] Oxford University, Computing Laboratory, Oxford
[2] School of Informatics, University of Edinburgh, Edinburgh
[3] Tanaka Business School, Imperial College, London
来源
Computer Supported Cooperative Work (CSCW) | 2005年 / 14卷 / 4期
基金
英国工程与自然科学研究理事会;
关键词
Breast-screening; Collaboration; Grid; Healthcare; Trust;
D O I
10.1007/s10606-005-9001-0
中图分类号
学科分类号
摘要
This paper presents findings from an investigation into requirements for collaboration in e-Science in the context of eDiaMoND, a Grid-enabled prototype system intended in part to support breast cancer screening. Detailed studies based on ethnographic fieldwork reveal the importance of accountability and visibility of work for trust and for the various forms of 'practical ethical action' in which clinicians are seen to routinely engage in this setting. We discuss the implications of our findings, specifically for the prospect of using distributed screening to make more effective use of scarce clinical skills and, more generally, for realising the Grid's potential for sharing data within and across institutions. Understanding how to afford trust and to provide adequate support for ethical concerns relating to the handling of sensitive data is a particular challenge for e-Health systems and for e-Science in general. Future e-Health and e-Science systems will need to be compatible with the ways in which trust is achieved, and practical ethical actions are realised and embedded within work practices. © Springer 2005.
引用
收藏
页码:369 / 398
页数:29
相关论文
共 45 条
[1]  
Anderson R., Representations and requirements: The value of ethnography in systems design, Human-computer Interaction, 9, pp. 151-182, (1994)
[2]  
Ashcroft R., Making sense of the guidelines on sharing personal data, Workshop on Ethical Issues in e-Science. All Hands Meeting 2003, (2003)
[3]  
Berg M., Goorman E., The contextual nature of medical information, International Journal of Medical Informatics, 56, 1-3, pp. 51-60, (1999)
[4]  
Brady M., Highnam R., Mammographic Image Analysis, (1999)
[5]  
Boseley S., Breast cancer
[6]  
the relentless rise, The Guardian, (2004)
[7]  
Caldas A., Are newsgroups extending "invisible colleges" into the digital infrastructure of science?, Economics of Innovation and New Technology, 12, 1, pp. 43-60, (2003)
[8]  
Cicourel A., The integration of distributed knowledge in collaborative medical diagnosis, Intellectual Teamwork: Social and Technological Foundations of Cooperative Work, (1990)
[9]  
Coopmans C., Making mammograms mobile: Suggestions for a sociology of data mobility, Information, Communication and Society
[10]  
Crane D., Invisible Colleges, (1972)