The PedsQL™ Family Impact Module: Preliminary reliability and validity

被引：455

作者：

Varni J.W. ^{[1
]}

Sherman S.A. ^{[2
]}

Burwinkle T.M. ^{[3
]}

Dickinson P.E. ^{[4
]}

Dixon P. ^{[5
]}

机构：

[1] Dept. Landsc. Arch./Urban Planning, College of Architecture, Texas A/M University, College Station

[2] San Diego State University, San Diego Joint Doctoral Program, San Diego, CA 92120

[3] Department of Anesthesiology, University of Washington, Seattle, WA 98195

[4] California Sch. of Prof. Psychology, San Diego, CA 92131

[5] Children's Convalescent Hospital, Children's Hospital/Health Center, San Diego, CA 92123

来源：

Health and Quality of Life Outcomes | / 2卷 / 1期

关键词：

Children; Family; Health-related quality of life; Pediatrics; PedsQL™;

D O I：

10.1186/1477-7525-2-55

中图分类号：

学科分类号：

摘要：

Background: The PedsQL™ Measurement Model was designed to measure health-related quality of life (HRQOL) in children and adolescents. The PedsQL™ 4.0 Generic Core Scales were developed to be integrated with the PedsQL™ Disease-Specific Modules. The newly developed PedsQL™ Family Impact Module was designed to measure the impact of pediatric chronic health conditions on parents and the family. The PedsQL™ Family Impact Module measures parent selfreported physical, emotional, social, and cognitive functioning, communication, and worry. The Module also measures parent-reported family daily activities and family relationships. Methods: The 36-item PedsQL™ Family Impact Module was administered to 23 families of medically fragile children with complex chronic health conditions who either resided in a long-term care convalescent hospital or resided at home with their families. Results: Internal consistency reliability was demonstrated for the PedsQL™ Family Impact Module Total Scale Score (α = 0.97), Parent HRQOL Summary Score (α = 0.96), Family Functioning Summary Score (α = 0.90), and Module Scales (average α = 0.90, range = 0.82 - 0.97). The PedsQL™ Family Impact Module distinguished between families with children in a long-term care facility and families whose children resided at home. Conclusions: The results demonstrate the preliminary reliability and validity of the PedsQL™ Family Impact Module in families with children with complex chronic health conditions. The PedsQL™ Family Impact Module will be further field tested to determine the measurement properties of this new instrument with other pediatric chronic health conditions. © 2004 Varni et al; licensee BioMed Central Ltd.

引用

页数：6

共 30 条

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