RECOMMENDATIONS FOR DIAGNOSIS, TREATMENT, AND MANAGEMENT OF INDIVIDUALS WITH TURNER SYNDROME

The objective of this study was to establish the optimum treatment and overall care recommendations for individuals with Turner syndrome at all stages of life as an aid to medical professionals working with these individuals. The Turner's Syndrome Society of the United States brought together 16 nationally recognized leaders in related, but multidisciplinary, research and clinical practice areas. Each participating individual was assigned a specific area on which to present initial proposed recommendations, which were then evaluated in full committee. Suggestions and overall discussions were then evaluated in small groups covering genetics, pediatrics, adult, and psychosocial issues. Each small group then formulated recommendations for the four topics in its area. These were then reviewed by all and coordinated into the following document. The overall recommendations are based on current understanding and practice standards; as such, they should be reviewed as new developments may indicate.