INFORMED CONSENT AND HUNTINGTON DISEASE - A MODEL FOR COMMUNICATION

被引:24
作者
SHARPE, NF
机构
[1] Hamilton, Ont. L8R 3B7
来源
AMERICAN JOURNAL OF MEDICAL GENETICS | 1994年 / 50卷 / 03期
关键词
DUTY OF CARE; PREDICTIVE TESTING; PRESYMPTOMATIC; STANDARD OF CARE;
D O I
10.1002/ajmg.1320500306
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
American and Canadian professional accreditation standards for medical genetics, and genetic counseling require certain abilities with regard to ''communication.'' What remains unclear is how such standards are to be interpreted in terms of appropriate clinical protocols, objectives, and values. These issues have significant medical and legal implications, particularly with regard to medical malpractice. From the perspective of genetic testing for Huntington disease, this paper identifies those clinical objectives and practices which may be described as constituting the appropriate standard of care for ''communication,'' and informed consent. (C) 1994 Wiley-Liss, Inc.
引用
收藏
页码:239 / 246
页数:8
相关论文
共 78 条
[51]  
NANCE WE, 1992, AM J HUM GENET, V51, P1443
[52]   CULTURAL AND PSYCHOSOCIAL CONSIDERATIONS IN SCREENING FOR THALASSEMIA IN THE SOUTHEAST-ASIAN REFUGEE POPULATION [J].
NIDORF, JF ;
NGO, KY .
AMERICAN JOURNAL OF MEDICAL GENETICS, 1993, 46 (04) :398-402
[53]   PSYCHOTHERAPY WITH SOUTHEAST-ASIAN AMERICAN CLIENTS [J].
NISHIO, K ;
BILMES, M .
PROFESSIONAL PSYCHOLOGY-RESEARCH AND PRACTICE, 1987, 18 (04) :342-346
[54]  
PARRY R, 1984, PSYCHOL ASPECTS GENE, P11
[55]   DECISION-ANALYSIS [J].
PAUKER, SG ;
KASSIRER, JP .
NEW ENGLAND JOURNAL OF MEDICINE, 1987, 316 (05) :250-258
[56]  
PAUKER SG, 1987, DB OAS, V23, P279
[57]   THE ETHICAL CRISIS FOR CROSS-CULTURAL COUNSELING AND THERAPY [J].
PEDERSEN, PB ;
MARSELLA, AJ .
PROFESSIONAL PSYCHOLOGY, 1982, 13 (04) :492-500
[58]   DUTY TO DISCLOSE IN MEDICAL GENETICS - A LEGAL PERSPECTIVE [J].
PELIAS, MZ .
AMERICAN JOURNAL OF MEDICAL GENETICS, 1991, 39 (03) :347-354
[59]  
PICARD EL, 1984, LEGAL LIABILITY DOCT, P26
[60]  
PUNALESMOREJON D, 1992, BD OAS, V38, P11