Learning disability and epilepsy .2. A review of available outcome measures and position statement on development priorities

被引：26

作者：

Espie, CA

Kerr, M

Paul, A

OBrien, G

Betts, T

Clark, J

Jacoby, A

Baker, G

机构：

[1] GARTNAVEL ROYAL HOSP, ACAD CTR, DEPT PSYCHOL MED, GLASGOW G12 0XH, LANARK, SCOTLAND

[2] WELSH CTR LEARNING DISABIL, CARDIFF CF4 3BL, S GLAM, WALES

[3] UNIV GLASGOW, WESTERN INFIRM, DEPT MED & THERAPEUT, GLASGOW G11 6NT, LANARK, SCOTLAND

[4] NORTHGATE HOSP, MORPETH NE61 3BP, NORTHD, ENGLAND

[5] QUEEN ELIZABETH PSYCHIAT HOSP, DEPT PSYCHIAT, BIRMINGHAM B15 2QZ, W MIDLANDS, ENGLAND

[6] QUARRIERS EPILEPSY CTR, BRIDGE OF WEIR PA11 3SD, RENFREW, SCOTLAND

[7] UNIV NEWCASTLE UPON TYNE, CTR HLTH SERV RES, NEWCASTLE UPON TYNE NE1 7RU, TYNE & WEAR, ENGLAND

[8] UNIV LIVERPOOL, WALTON CTR NEUROL, DEPT NEUROSCI, LIVERPOOL L9 1AE, MERSEYSIDE, ENGLAND

来源：

SEIZURE-EUROPEAN JOURNAL OF EPILEPSY | 1997年 / 6卷 / 05期

关键词：

epilepsy; learning disability; outcome measurement;

D O I：

10.1016/S1059-1311(97)80033-7

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

People with epilepsy plus learning disabilities pose a challenge in terms of clinical management and research investigation, and, to date, the measurement of outcomes in this population has been limited. There have been uncertainties concerning both the 'what' and the 'how' of assessment. This paper presents a comprehensive review of available outcome measures across nine domains, i.e. relating to seizures, drugs, cognitive function, behaviour, social functioning, carer functioning, attitudes, motivation and 'quality of life'. This last domain reflects more global measures designed to encompass several assessment strands. The uses and limitations of each scale is discussed and, where data are available, psychometric properties are also presented. The paper concludes with suggestions for the further development of outcome measures in this population.

引用

页码：337 / 350

页数：14

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