Comparison of instruments addressing quality of life in patients with ALS and their caregivers

被引：53

作者：

Bromberg, MB ^{[1
]}

Forshew, DA ^{[1
]}

机构：

[1] Univ Utah, Dept Neurol, Salt Lake City, UT 84132 USA

来源：

NEUROLOGY | 2002年 / 58卷 / 02期

关键词：

D O I：

10.1212/WNL.58.2.320

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Most quality of life (QoL) instruments for ALS focus on function. An open instrument, the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) that asks subjects to nominate and rate QoL areas important at the time of evaluation, was given to patients and caregiver spouses. Patients also completed function-based instruments. Correlations were poor between SEIQoL-DW and function-based instruments. SEIQoL-DW scores were worse for caregivers than for patients, probably explained by shifts in patient expectations with disease progression.

引用

页码：320 / 322

页数：3

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