'I am a normal man': a narrative analysis of the accounts of older people with Down's syndrome who lived in institutionalised settings

被引:6
作者
Brown, Jennifer [1 ]
Dodd, Karen [1 ]
Vetere, Arlene [2 ]
机构
[1] Surrey & Borders Partnership NHS Trust, Surrey KT19 8PB, England
[2] Univ Surrey, Fac Arts & Human Sci, Dept Psychol, Surrey GU2 7XH, England
关键词
Down's syndrome; empowerment issues; history of learning disability; identity; narratives; ADULTS;
D O I
10.1111/j.1468-3156.2009.00596.x
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This paper is a narrative analysis of the accounts of six older people with Down's syndrome who spent part of their childhood in institutional environments. The study aimed to find out how the participants talked about themselves. Different types of narrative analysis were used, including those of Murray (Qualitative psychology: a practical guide to research methods, London, UK, Sage, 2003), Gergen & Gergen (Hist Social Psychol, Hillsdale, NJ, Erlbaum, 1984) and Labov & Waletsky (Essays on the verbal and visual arts, Seattle, University of Washington Press, 1967). All of the participants spoke about their childhood, current and future lives. Most participants were able to reflect upon their strengths, limitations and hopes. The analysis highlighted the commonalities across the accounts: loss, abuse, health, significant others, transition, resilience and identity. Significantly, none of the participants identified themselves as having 'Down's syndrome' or a 'learning disability,' nor did they identify with being 'older'. Instead, individuals identified themselves in relation to gender and social roles. The accounts varied in terms of their form, structure, coherence and reflexive capacity. Clinical implications are discussed.
引用
收藏
页码:217 / 224
页数:8
相关论文
共 32 条
[11]   Parents telling their offspring about Down Syndrome and disability [J].
Cunningham, CC ;
Glenn, S ;
Fitzpatrick, H .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2000, 13 (02) :47-61
[12]   Attachment narrative therapy: integrating ideas from narrative and attachment theory in systemic family therapy with eating disorders [J].
Dallos, R .
JOURNAL OF FAMILY THERAPY, 2004, 26 (01) :40-65
[13]   'She has different fits to me': How people with learning difficulties see themselves [J].
Davies, CA ;
Jenkins, R .
DISABILITY & SOCIETY, 1997, 12 (01) :95-109
[14]  
Department of Health, 2001, VAL PEOPL NEW STRAT
[15]   Evolving guidelines for publication of qualitative research studies in psychology and related fields [J].
Elliott, R ;
Fischer, CT ;
Rennie, DL .
BRITISH JOURNAL OF CLINICAL PSYCHOLOGY, 1999, 38 :215-229
[16]   Social identity and people with learning difficulties: Implications for self-advocacy groups [J].
Finlay, M ;
Lyons, E .
DISABILITY & SOCIETY, 1998, 13 (01) :37-51
[17]  
Fivush R, 2001, SELF IN TIME: DEVELOPMENTAL PERSPECTIVES, P35
[18]  
FONAGY P, 1994, INFANT MENT HEALTH J, V15, P57, DOI 10.1002/1097-0355(199421)15:1<57::AID-IMHJ2280150108>3.0.CO
[19]  
2-0
[20]  
Labov W, 1967, ESSAYS VERBAL VISUAL, P12, DOI DOI 10.1075/JNLH.7.02NAR