Are pregnant women making informed choices about prenatal screening?

被引:151
作者
van den Berg, M
Timmermans, DRM
ten Kate, LP
van Vugt, JMG
van der Wal, G
机构
[1] Vrije Univ Amsterdam, Med Ctr, Dept Publ & Occupat Hlth, Inst Res Extramural Med, NL-1081 BT Amsterdam, Netherlands
[2] Vrije Univ Amsterdam, Med Ctr, Dept Clin & Human Genet, NL-1081 BT Amsterdam, Netherlands
[3] Vrije Univ Amsterdam, Med Ctr, Dept Obstet & Gynecol, NL-1081 BT Amsterdam, Netherlands
关键词
decision making; informed choice; prenatal screening; genetic testing; Down syndrome;
D O I
10.1097/01.GIM.0000162876.65555.AB
中图分类号
Q3 [遗传学];
学科分类号
071007 ; 090102 ;
摘要
Purpose: Prenatal screening should enable pregnant women to make informed choices. An informed decision is defined as being based on sufficient, relevant information and consistent with the decision maker's values. This study aims to assess to what extent pregnant women make informed choices about prenatal screening, and to assess the psychological effects of informed decision-making. Methods: The study sample consisted of 1159 pregnant women who were offered the nuchal translucency measurement or the maternal serum screening test. Level of knowledge, value consistency, informed choice, decisional conflict, satisfaction with decision, and anxiety were measured using questionnaires. Results: Of the participants, 83% were classified as having sufficient knowledge about prenatal screening, 82% made a value-consistent decision to accept or decline prenatal screening, and 68% made an informed decision. Informed choice was associated with more satisfaction with the decision, less decisional conflict (this applied only to test acceptors), but was not associated with less anxiety. Conclusion: Although the rate of informed choice is relatively high, substantial percentages of women making uninformed choices due to insufficient knowledge, value inconsistency, or both, were found. Informed choice appeared to be psychologically beneficial. The present study underlines the importance of achieving informed choice in the context of prenatal screening.
引用
收藏
页码:332 / 338
页数:7
相关论文
共 37 条
[1]   THE PSYCHOLOGY OF ATTITUDES - EAGLY,AH, CHAIKEN,S [J].
AJZEN, I .
CONTEMPORARY PSYCHOLOGY, 1994, 39 (08) :800-801
[2]   Gaining informed consent for screening [J].
Austoker, J .
BMJ-BRITISH MEDICAL JOURNAL, 1999, 319 (7212) :722-723
[3]  
Beauchamp TL, 1989, The Principles of biomedical ethics, V3rd
[4]  
Bekker H, 1999, Health Technol Assess, V3, P1
[5]   Applying decision analysis to facilitate informed decision making about prenatal diagnosis for Down syndrome: a randomised controlled trial [J].
Bekker, HL ;
Hewison, J ;
Thornton, JG .
PRENATAL DIAGNOSIS, 2004, 24 (04) :265-275
[6]   Understanding why decision aids work: linking process with outcome [J].
Bekker, HL ;
Hewison, J ;
Thornton, JG .
PATIENT EDUCATION AND COUNSELING, 2003, 50 (03) :323-329
[7]   Advances in prenatal screening for Down syndrome: I. General principles and second trimester testing [J].
Benn, PA .
CLINICA CHIMICA ACTA, 2002, 323 (1-2) :1-16
[8]   Prenatal genetic testing: Content of discussions between obstetric providers and pregnant women [J].
Bernhardt, BA ;
Geller, G ;
Doksum, T ;
Larson, SM ;
Roter, D ;
Holtzman, NA .
OBSTETRICS AND GYNECOLOGY, 1998, 91 (05) :648-655
[9]   Promoting informed decisions about cancer screening in communities and healthcare systems [J].
Briss, P ;
Rimer, B ;
Reilley, B ;
Coates, RC ;
Lee, NC ;
Mullen, P ;
Corso, P ;
Hutchinson, AB ;
Hiatt, R ;
Kerner, J ;
George, P ;
White, C ;
Gandhi, N ;
Saraiya, M ;
Breslow, R ;
Isham, G ;
Teutsch, SM ;
Hinman, AR ;
Lawrence, R .
AMERICAN JOURNAL OF PREVENTIVE MEDICINE, 2004, 26 (01) :67-80
[10]  
Carroll JC, 2000, CAN FAM PHYSICIAN, V46, P614