The role of the family in genetic testing: Theoretical perspectives, current knowledge, and future directions

被引:79
作者
Peterson, SK [1 ]
机构
[1] Univ Texas, MD Anderson Canc Ctr, Dept Behav Sci, Unit 1330, Houston, TX 77230 USA
关键词
genetic testing; family; psychosocial;
D O I
10.1177/1090198105278751
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
This article addresses conceptual challenges and theoretical approaches for examining the role of the family in responding and adapting to genetic testing for inherited conditions. Using a family systems perspective, family-based constructs that are relevant to genetic testing may be organized into three domains: family communication, organization and structure of family relationships, and health-related cognitions and beliefs shared within families. Empirical findings are presented from key content areas in family-based genetics research, including family communication, how genetic testing affects family relationships, psychological responses to genetic testing in the family context, and family-based influences on health decisions. Future research should explore decision making about genetic testing or behavior change specifically within the context of the family system and should identify family-based determinants of genetic testing outcomes.
引用
收藏
页码:627 / 639
页数:13
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