Comparison of three generic questionnaires measuring quality of life in adolescents and adults with cystic fibrosis: The 36-item short form health survey, the quality of life profile for chronic diseases, and the questions on life satisfaction

被引:43
作者
Goldbeck, L [1 ]
Schmitz, TG [1 ]
机构
[1] Univ Clin Ulm, Dept Pediat, D-89075 Ulm, Germany
关键词
adolescents and adults; cystic fibrosis; generic questionnaires; measurement effects; quality of life;
D O I
10.1023/A:1016711704283
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objective: To compare different generic instruments in measuring quality of life and to demonstrate dimensions of quality of life (QL) in patients with cystic fibrosis (CF). Methods: The short-form-36 health survey (SF-36), the quality of life profile for chronic diseases (PLC), and the questions on life satisfaction (FLZ(M)) were simultaneously employed in a cross-sectional study with 70 adolescents and adults with CF. The different concepts of the measures were compared. Internal consistency (Cronbach's alpha), convergent and construct validity (correlation patterns, common factor analysis), and external validity (correlations with symptom and pulmonary function scores, with intensity of therapy; comparisons with healthy peers) of the three instruments were investigated. Results: Similar reliability, but different validity of the questionnaires are demonstrated. Seventy-three percent of the total variance across the three measures could be explained with a seven-factor-solution: (1) physical functioning (19.3% of total variance), (2) mental health (19.3%), (3) social integration (7.5%), (4) role function/pain (7.5%), (5) economic/material living conditions (7.5%), (6) partnership/family (6.7%) and (7) anxiety (5.2%). Discussion: The different validity of the instruments has to be considered in chosing a questionnaire appropriate to the purpose of measuring. Shortcomings of each instrument can be overcome by multimethod designs and by developing disease-specific scales.
引用
收藏
页码:23 / 36
页数:14
相关论文
共 23 条
[11]  
EPKER J, 1999, PEDIATR PULM, V19, P327
[12]  
GEE L, 1999, PEDIATR PULM, V19, P326
[13]  
Goldbeck L, 1999, MONATSSCHR KINDERH, V147, P823, DOI 10.1007/s001120050505
[14]   Questions on Life Satisfaction (FLZM) -: A short questionnaire for assessing subjective quality of life [J].
Henrich, G ;
Herschbach, P .
EUROPEAN JOURNAL OF PSYCHOLOGICAL ASSESSMENT, 2000, 16 (03) :150-159
[15]  
HENRICH G, 1995, LEBENSQUALITAT ONKOL, V2, P77
[16]  
Henry B, 1996, PEDIAT PULMONOL, P337
[17]   THE QUALITY OF WELL-BEING IN CYSTIC-FIBROSIS [J].
ORENSTEIN, DM ;
NIXON, PA ;
ROSS, EA ;
KAPLAN, RM .
CHEST, 1989, 95 (02) :344-347
[18]  
QUITTNER AL, 1999, PEDIATR PULM, V19, P326
[19]  
Siegrist J., 1996, Profil der lebensqualitat chronisch kranker [quality of life profile for chronically ill patients]
[20]   Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity? [J].
Staab, D ;
Wenninger, K ;
Gebert, N ;
Rupprath, K ;
Bisson, S ;
Trettin, M ;
Paul, KD ;
Keller, KM ;
Wahn, U .
THORAX, 1998, 53 (09) :727-731