Developing and validating an index for measuring health in patients with ankylosing spondylitis

被引：20

作者：

Kiltz, Uta ^{[1
]}

van der Heijde, Desiree ^{[2
]}

Cieza, Alarcos ^{[3
,4
,5
]}

Boonen, Annelies ^{[6
]}

Stucki, Gerold ^{[4
,7
]}

Uestuen, Bedirhan ^{[8
]}

Braun, Juergen ^{[1
]}

机构：

[1] Rheumazentrum Ruhrgebiet, Herne, Germany

[2] Leiden Univ, Med Ctr, Dept Rheumatol, Leiden, Netherlands

[3] Univ Munich, Res Unit Biopsychosocial Hlth, IHRS, Munich, Germany

[4] Swiss Parapleg Res SPF, Nottwil, Switzerland

[5] SPF, WHO FIC CC Germany DIMDI, ICF Res Branch, Nottwil, Switzerland

[6] Maastricht Univ, Med Ctr, Dept Internal Med, Div Rheumatol, Maastricht, Netherlands

[7] Univ Lucerne, Dept Hlth Sci & Hlth Policy, Luzern, Switzerland

[8] CTS Team, World Hlth Org, Geneva, Switzerland

来源：

RHEUMATOLOGY | 2011年 / 50卷 / 05期

关键词：

Ankylosing spondylitis; Functioning; Health status; Health status measures; International Classification of Functioning; Disability and Health; INTERNATIONAL CLASSIFICATION; FUNCTIONAL ABILITY; QUESTIONNAIRE; RELIABILITY; IMPAIRMENT; DISABILITY; VALIDITY;

D O I：

10.1093/rheumatology/keq315

中图分类号：

R5 [内科学];

学科分类号：

100201 [内科学];

摘要：

Methods. The project is a combined effort of the Assessment of SpondyloArthritis International Society, the ICF Research Branch of the World Health Organization (WHO) Collaboration Centre of the Family of International Classifications and the WHO. There are five steps in the development and validation of the health index for patients with AS: (i) development of an item pool; (ii) identification of candidate items; (iii) item selection; (iv) item reduction; and (v) creation of a final version. Consensus about items that have to be part will be reached in a final consensus conference. Results. During a meeting in February 2009, we coordinated the development process of the health index for patients with AS. The results of this investigation will be the health index for patients with AS. Conclusion. The goal of developing a health index for patients with AS based on the ICF is very much in line with the broader goal of the WHO to define health indices to ensure the comparability of them within the framework of the ICF.

引用

页码：894 / 898

页数：5

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