The fight for 'health-related normality': A qualitative study of the experiences of individuals living with established inflammatory bowel disease (IBD)

被引：95

作者：

Hall, NJ

Rubin, GP

Dougall, A

Hungin, APS

Neely, J

机构：

[1] Univ Sunderland, Ctr Primary & Community Care, Sch Hlth Nat & Social Sci, Sunderland SR2 7BW, England

[2] Univ Durham, Dept Anthropol, Durham DH1 3HP, England

[3] Univ Durham, Ctr Integrated Hlth Care Res, Durham DH1 3HP, England

[4] Univ Durham, Dept Psychol, Durham DH1 3HP, England

来源：

JOURNAL OF HEALTH PSYCHOLOGY | 2005年 / 10卷 / 03期

关键词：

chronic illness; coping; grounded theory; Inflammatory Bowel Disease; normality;

D O I：

10.1177/1359105305051433

中图分类号：

B849 [应用心理学];

学科分类号：

040203 ;

摘要：

This article reports on the experiences of individuals living with IBD and identifies a range of coping strategies used by them. Qualitative data from 15 individual interviews and three focus groups were analysed using a grounded theory approach. The main focus is on the emergent core concept of 'health-related normality'. A theoretical framework is proposed to explain how individuals with IBD assess their health-related normality, their fight to maintain it and their need to retain the appearance of normality to others. It is concluded that individuals maintain their health-related normality along certain time and context sensitive continuums rather than fitting into a distinct typology.

引用

页码：443 / 455

页数：13

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