The challenges and opportunities for transitional care research

被引:58
作者
McDonagh, J. E. [1 ]
Kelly, D. A. [2 ]
机构
[1] Birmingham Childrens Hosp NHS Fdn Trust, Dept Pediat & Adolescent Rheumatol, Birmingham B4 6NH, W Midlands, England
[2] Birmingham Childrens Hosp NHS Fdn Trust, Liver Unit, Birmingham B4 6NH, W Midlands, England
关键词
adolescent; transitional care; research participation; clinical research; adherence; multidisciplinary working; QUALITY-OF-LIFE; JUVENILE IDIOPATHIC ARTHRITIS; LIVER-TRANSPLANT RECIPIENTS; ADULT CARE; HEALTH-CARE; YOUNG-ADULTS; MEDICATION ADHERENCE; CYSTIC-FIBROSIS; PEDIATRIC TRANSPLANTATION; ADOLESCENT HEALTH;
D O I
10.1111/j.1399-3046.2010.01343.x
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
The provision of healthcare for young people with solid organ transplants as they move into adult-centered services has received increasing attention over recent years particularly as non-adherence and graft loss increase after transfer. Despite medical advances and that transitional care is now well established on national and international health agendas, progress in the research arena has unfortunately been slow. The aims of this paper are to consider why this is and discuss the particular challenges facing clinical researchers working within the area.
引用
收藏
页码:688 / 700
页数:13
相关论文
共 98 条
[91]   Good practices that address continuity during transition from child to adult care: synthesis of the evidence [J].
While, A ;
Forbes, A ;
Ullman, R ;
Lewis, S ;
Mathes, L ;
Griffiths, P .
CHILD CARE HEALTH AND DEVELOPMENT, 2004, 30 (05) :439-452
[92]  
WHO, 2002, Adolescent Friendly Health Services: An Agenda for Change
[93]   Health insurance considerations for adolescent transplant recipients as they transition to adulthood [J].
Willoughby, Lisa M. ;
Fukami, Sumina ;
Bunnapradist, Suphamai ;
Gavard, Jeffrey A. ;
Lentine, Krista L. ;
Hardinger, Karen L. ;
Burroughs, Thomas E. ;
Takemoto, Steven K. ;
Schnitzler, Mark A. .
PEDIATRIC TRANSPLANTATION, 2007, 11 (02) :127-131
[94]  
Yarcheski Adela, 2007, J Pediatr Nurs, V22, P169, DOI 10.1016/j.pedn.2006.08.001
[95]   Health risk screening in adolescents: room for improvement in a tertiary inpatient setting [J].
Yeo, MSM ;
Bond, LM ;
Sawyer, SM .
MEDICAL JOURNAL OF AUSTRALIA, 2005, 183 (08) :427-429
[96]   Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care [J].
Zack, J ;
Jacobs, CP ;
Keenan, PM ;
Harney, K ;
Woods, ER ;
Colin, AA ;
Emans, SJ .
PEDIATRIC PULMONOLOGY, 2003, 36 (05) :376-383
[97]  
Zamora I, 1997, An Esp Pediatr, VSpec No 1, P25
[98]   Perceived barriers to adherence among adolescent renal transplant candidates [J].
Zelikovsky, Nataliya ;
Schast, Aileen P. ;
Palmer, JoAnn ;
Meyer, Kevin E. C. .
PEDIATRIC TRANSPLANTATION, 2008, 12 (03) :300-308