Ethical goals of community consultation in research

被引:173
作者
Dickert, N
Sugarman, J
机构
[1] Johns Hopkins Univ, Phoebe R Berman Bioeth Inst, Baltimore, MD 21205 USA
[2] Johns Hopkins Univ, Dept Med, Baltimore, MD USA
关键词
D O I
10.2105/AJPH.2004.058933
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval. Community consultation is a particularly common method of involving Communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it difficult for investigators, sponsors, and institutional review boards to design and evaluate consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation-the ethical goals it is designed to achieve-should be universal, We propose 4 ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating Community consultation processes.
引用
收藏
页码:1123 / 1127
页数:5
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