Standards for epidemiologic studies and surveillance of epilepsy

被引：705

作者：

Thurman, David J. ^{[1
]}

Beghi, Ettore ^{[2
]}

Begley, Charles E. ^{[3
,4
]}

Berg, Anne T. ^{[5
,6
]}

Buchhalter, Jeffrey R. ^{[7
]}

Ding, Ding ^{[8
]}

Hesdorffer, Dale C. ^{[9
,10
]}

Hauser, W. Allen ^{[9
,10
,11
]}

Kazis, Lewis ^{[12
]}

Kobau, Rosemarie

Kroner, Barbara ^{[13
]}

Labiner, David ^{[14
]}

Liow, Kore ^{[15
]}

Logroscino, Giancarlo ^{[16
]}

Medina, Marco T. ^{[17
]}

Newton, Charles R. ^{[18
,19
]}

Parko, Karen ^{[20
]}

Paschal, Angelia ^{[21
]}

Preux, Pierre-Marie ^{[22
]}

Sander, Josemir W. ^{[23
,24
]}

Selassie, Anbesaw ^{[25
]}

Theodore, William ^{[26
]}

Tomson, Torbjorn ^{[27
]}

Wiebe, Samuel ^{[28
,29
]}

机构：

[1] CDC, Natl Ctr Chron Dis Prevent & Hlth Promot, Atlanta, GA 30333 USA

[2] Mario Negri Inst Pharmacol Res, Lab Neurol Disorders, Milan, Italy

[3] Univ Texas Hlth Sci Ctr, Sch Publ Hlth, Dept Management & Policy Sci, Houston, TX USA

[4] Univ Texas Hlth Sci Ctr, Sch Publ Hlth, Ctr Hlth Serv Res, Houston, TX USA

[5] No Illinois Univ, Dept Biol, De Kalb, IL 60115 USA

[6] Chicago NW Childrens Mem Hosp, Epilepsy Ctr, Chicago, IL USA

[7] Mayo Clin, Dept Child & Adolescent Neurol, Scottsdale, AZ USA

[8] Fudan Univ, Inst Neurol, Dept Biostat & Epidemiol, Shanghai 200433, Peoples R China

[9] Columbia Univ, Dept Epidemiol, New York, NY USA

[10] Columbia Univ, Gertrude H Sergievsky Ctr, New York, NY 10027 USA

[11] Columbia Univ, Dept Neurol, New York, NY USA

[12] Boston Univ, Sch Publ Hlth, Dept Hlth Policy & Management, Boston, MA USA

[13] RTI Int, Rockville, MD USA

[14] Univ Arizona, Dept Neurol, Tucson, AZ USA

[15] Univ Hawaii, John A Burns Sch Med, Dept Internal Med Neurol, Honolulu, HI 96822 USA

[16] Univ Bari, Dept Neurol, Bari, Italy

[17] Natl Autonomous Univ Honduras, Fac Med Sci, Tegucigalpa, Honduras

[18] Kenya Govt Med Res Ctr, Wellcome Trust Collaborat Programme, Kilifi, Kenya

[19] UCL, Inst Child Hlth, London, England

[20] UCSF Sch Med, Dept Neurol, San Francisco, CA USA

[21] Mississippi Univ Women, Dept Hlth & Kinesiol, Columbus, MS USA

[22] Univ Limoges, Inst Neuroepidemiol & Trop Neurol & Trop & Compar, Limoges, France

[23] UCL Inst Neurol, London WC1N 3BG, England

[24] Netherlands Fdn, SEIN Epilepsy Inst, Heemstede, Netherlands

[25] Med Univ S Carolina, Dept Med, Charleston, SC 29425 USA

[26] NIH, Clin Epilepsy Sect, Bethesda, MD 20892 USA

[27] Karolinska Univ Hosp, Dept Neurol, Stockholm, Sweden

[28] Univ Calgary, Dept Clin Neurol Sci, Calgary, AB, Canada

[29] Univ Calgary, Hotchkiss Brain Inst, Calgary, AB, Canada

来源：

EPILEPSIA | 2011年 / 52卷

关键词：

Epidemiology; Surveillance; Epilepsy; QUALITY-OF-LIFE; SEIZURE SEVERITY SCALE; ACTIVE CONVULSIVE EPILEPSY; SUDDEN UNEXPECTED DEATH; FORM HEALTH SURVEY; INTERNATIONAL-LEAGUE; RISK-FACTORS; PSYCHIATRIC COMORBIDITY; ILAE CLASSIFICATION; ANTIEPILEPTIC DRUGS;

D O I：

10.1111/j.1528-1167.2011.03121.x

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

Worldwide, about 65 million people are estimated to have epilepsy. Epidemiologic studies are necessary to define the full public health burden of epilepsy; to set public health and health care priorities; to provide information needed for prevention, early detection, and treatment; to identify education and service needs; and to promote effective health care and support programs for people with epilepsy. However, different definitions and epidemiologic methods complicate the tasks of these studies and their interpretations and comparisons. The purpose of this document is to promote consistency in definitions and methods in an effort to enhance future population-based epidemiologic studies, facilitate comparison between populations, and encourage the collection of data useful for the promotion of public health. We discuss: (1) conceptual and operational definitions of epilepsy, (2) data resources and recommended data elements, and (3) methods and analyses appropriate for epidemiologic studies or the surveillance of epilepsy. Variations in these are considered, taking into account differing resource availability and needs among countries and differing purposes among studies.

引用

页码：2 / 26

页数：25

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