Factors associated with the empowerment of Japanese families raising a child with developmental disorders

被引:42
作者
Wakimizu, Rie [1 ]
Fujioka, Hiroshi [2 ]
Yoneyama, Akira [3 ]
Iejima, Atsushi [4 ]
Miyamoto, Shinya [5 ]
机构
[1] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Nursing Sci, Dept Child Hlth Care & Nursing, Tsukuba, Ibaraki, Japan
[2] Chiba Prefectural Univ Hlth Sci, Dept Nursing, Chiba, Japan
[3] Natl Rehabil Ctr Disabled Children, Dept Pediat, Tokyo, Japan
[4] Ibaraki Disabled Childrens Hosp, Dept Pediat, Mito, Ibaraki, Japan
[5] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Disabil Sci, Dept Dev Behav Pediat, Tsukuba, Ibaraki, Japan
关键词
Child-rearing; Developmental disorders; Family empowerment; Family support; PARENTS; AUTISM; STRESS; DISABILITIES; VERSION; STYLES; MODEL;
D O I
10.1016/j.ridd.2011.01.037
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
We identified factors associated with the empowerment of Japanese families using the Family Empowerment Scale (FES) to contribute to the improvement of empowerment in Japanese families raising a child with developmental disorders (DDs). The study was conducted in 350 caregivers who raised children aged 4-18 years with DDs in urban and suburban districts in Japan. Multiple regression analysis of data collected from 275 respondents revealed that a decrease in family empowerment level correlated with a higher number of siblings reared together, a shorter period since the diagnosis was made, and lower awareness of social support and self-efficacy in caregivers. Medications, possession of an intellectual disability certificate, infrequent hospital visits of the child, disuse of local services by caregivers, and young caregivers also correlated with a lower level of empowerment in the Japanese family. (C) 2011 Elsevier Ltd. All rights reserved.
引用
收藏
页码:1030 / 1037
页数:8
相关论文
共 29 条
[1]   Predictors of parenting stress in a diverse sample of parents of early adolescents in high-risk communities [J].
Anderson, Lori S. .
NURSING RESEARCH, 2008, 57 (05) :340-350
[2]  
[Anonymous], 1982, Japanese Journal of Educational Psychology, DOI [DOI 10.5926/JJEP1953.30.164, DOI 10.5926/JJEP1953.30.1_64]
[3]   THE EMPOWERMENT PROCESS - INTEGRATING THEORY AND PRACTICE [J].
CONGER, JA ;
KANUNGO, RN .
ACADEMY OF MANAGEMENT REVIEW, 1988, 13 (03) :471-482
[4]   Helpgiving styles and parent empowerment in families with a young child with a disability [J].
Dempsey, I ;
Dunst, CJ .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2004, 29 (01) :40-51
[5]  
DROTAR D, 1975, PEDIATRICS, V56, P710
[6]   Factors Associated With Parental Distress [J].
Duchovic, Catherine A. ;
Gerkensmeyer, Janis E. ;
Wu, Jingwei .
JOURNAL OF CHILD AND ADOLESCENT PSYCHIATRIC NURSING, 2009, 22 (01) :40-48
[7]   Moderators of stress in parents of children with autism [J].
Dunn, ME ;
Burbine, T ;
Bowers, CA ;
Tantleff-Dunn, S .
COMMUNITY MENTAL HEALTH JOURNAL, 2001, 37 (01) :39-52
[8]  
Dunst C., 1993, Building and evaluating family support initiatives
[9]  
FISMAN S, 1991, PSYCHIAT CLIN N AM, V14, P199
[10]  
FUJII K, 2008, J CHILD HLTH, V67, P10