Factors associated with the empowerment of Japanese families raising a child with developmental disorders

被引:42
作者
Wakimizu, Rie [1 ]
Fujioka, Hiroshi [2 ]
Yoneyama, Akira [3 ]
Iejima, Atsushi [4 ]
Miyamoto, Shinya [5 ]
机构
[1] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Nursing Sci, Dept Child Hlth Care & Nursing, Tsukuba, Ibaraki, Japan
[2] Chiba Prefectural Univ Hlth Sci, Dept Nursing, Chiba, Japan
[3] Natl Rehabil Ctr Disabled Children, Dept Pediat, Tokyo, Japan
[4] Ibaraki Disabled Childrens Hosp, Dept Pediat, Mito, Ibaraki, Japan
[5] Univ Tsukuba, Grad Sch Comprehens Human Sci, Inst Disabil Sci, Dept Dev Behav Pediat, Tsukuba, Ibaraki, Japan
关键词
Child-rearing; Developmental disorders; Family empowerment; Family support; PARENTS; AUTISM; STRESS; DISABILITIES; VERSION; STYLES; MODEL;
D O I
10.1016/j.ridd.2011.01.037
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
We identified factors associated with the empowerment of Japanese families using the Family Empowerment Scale (FES) to contribute to the improvement of empowerment in Japanese families raising a child with developmental disorders (DDs). The study was conducted in 350 caregivers who raised children aged 4-18 years with DDs in urban and suburban districts in Japan. Multiple regression analysis of data collected from 275 respondents revealed that a decrease in family empowerment level correlated with a higher number of siblings reared together, a shorter period since the diagnosis was made, and lower awareness of social support and self-efficacy in caregivers. Medications, possession of an intellectual disability certificate, infrequent hospital visits of the child, disuse of local services by caregivers, and young caregivers also correlated with a lower level of empowerment in the Japanese family. (C) 2011 Elsevier Ltd. All rights reserved.
引用
收藏
页码:1030 / 1037
页数:8
相关论文
共 29 条
[11]  
Gutstein SE, 2009, ANN CLIN PSYCHIATRY, V21, P174
[12]  
Herbert Rosemary J, 2009, Res Theory Nurs Pract, V23, P107
[13]  
HIRAIWA M, 2009, J CHILD HLTH, V68, P330
[14]   MEASURING EMPOWERMENT IN FAMILIES WHOSE CHILDREN HAVE EMOTIONAL DISABILITIES - A BRIEF QUESTIONNAIRE [J].
KOREN, PE ;
DECHILLO, N ;
FRIESEN, BJ .
REHABILITATION PSYCHOLOGY, 1992, 37 (04) :305-321
[15]   Validation of 'personal strain' and 'role strain': Subscales of the short version of the Japanese version of the Zarit Burden Interview (J-ZBI_8) [J].
Kumamoto, K ;
Arai, Y .
PSYCHIATRY AND CLINICAL NEUROSCIENCES, 2004, 58 (06) :606-610
[16]   Southeast Asian Parents Raising a Child With Autism: A Qualitative Investigation of Coping Styles [J].
Luong, June ;
Yoder, Marian K. ;
Canham, Daryl .
JOURNAL OF SCHOOL NURSING, 2009, 25 (03) :222-229
[17]   IMPLICATIONS OF A MODEL OF STRESS AND COPING FOR SERVICES TO FAMILIES OF YOUNG DISABLED-CHILDREN [J].
MCCONACHIE, H .
CHILD CARE HEALTH AND DEVELOPMENT, 1994, 20 (01) :37-46
[18]  
*MIN ED CULT SPORT, 2003, REP NAT SURV SCH CHI
[19]  
*MIN HLTH LAB WELF, 2005, EST SUPP LAW PEOPL D
[20]  
MUNAKATA K, 1986, J MENTAL HLTH, V32, P49