Design of a National Distributed Health Data Network

被引:110
作者
Maro, Judith C.
Platt, Richard
Holmes, John H.
Strom, Brian L.
Hennessy, Sean
Lazarus, Ross
Brown, Jeffrey S. [1 ]
机构
[1] Harvard Univ, Sch Med, Dept Ambulatory Care & Prevent, Boston, MA 02215 USA
基金
美国医疗保健研究与质量局;
关键词
AMBULATORY PATIENTS; PUBLIC-HEALTH; CARE; CREATININE; DRUGS; THERAPEUTICS; MEDICATIONS; POTASSIUM; THERAPY;
D O I
10.7326/0003-4819-151-5-200909010-00139
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
A distributed health data network is a system that allows secure remote analysis of separate data sets, each comprising a different medical organization's or health plan's records. Distributed health data networks are currently being planned that could cover millions of people, permitting studies of comparative clinical effectiveness, best practices, diffusion of medical technologies, and quality of care. These networks could also support assessment of medical product safety and other public health needs. Distributed network technologies allow data holders to control all uses of their data, which overcomes many practical obstacles related to confidentiality, regulation, and proprietary interests. Some of the challenges and potential methods of operation of a multipurpose, multi-institutional distributed health data network are described.
引用
收藏
页码:341 / U69
页数:5
相关论文
共 31 条
[1]  
*AG HEALTHC RES QU, 2008, DISTR NETW AMB RES T
[2]  
*AG HEALTHC RES QU, 2008, DEV DISTR RES NETW C
[3]   Outpatient use of cardiovascular drugs during pregnancy [J].
Andrade, Susan E. ;
Raebel, Marsha A. ;
Brown, Jeffrey ;
Lane, Kimberly ;
Livingston, James ;
Boudreau, Denise ;
Rolnick, Sharon J. ;
Roblin, Douglas ;
Smith, David H. ;
Dal Pan, Gerald J. ;
Scott, Pamela E. ;
Platt, Richard .
PHARMACOEPIDEMIOLOGY AND DRUG SAFETY, 2008, 17 (03) :240-247
[4]   Use of prescription medications with a potential for fetal harm among pregnant women [J].
Andrade, Susan E. ;
Raebel, Marsha A. ;
Morse, Abraham N. ;
Davis, Robert L. ;
Chan, K. Arnold ;
Finkelstein, Jonathan A. ;
Fortman, Kris K. ;
McPhillips, Heather ;
Roblin, Douglas ;
Smith, David H. ;
Yood, Marianne Ulcickas ;
Platt, Richard ;
Gurwitz, Jerry H. .
PHARMACOEPIDEMIOLOGY AND DRUG SAFETY, 2006, 15 (08) :546-554
[5]   Use of antidepressant medications during pregnancy: a multisite study [J].
Andrade, Susan E. ;
Raebel, Marsha A. ;
Brown, Jeffrey ;
Lane, Kimberly ;
Livingston, James ;
Boudreau, Denise ;
Rolnick, Sharon J. ;
Roblin, Douglas ;
Smith, David H. ;
Willy, Mary E. ;
Staffa, Judy A. ;
Platt, Richard .
AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY, 2008, 198 (02) :194.e1-194.e5
[6]  
CHAN KA, 2005, AHRQ PUBLICATION, P225
[7]   Vaccine Safety Datalink project: A new tool for improving vaccine safety monitoring in the United States [J].
Chen, RT ;
Glasser, JW ;
Rhodes, PH ;
Davis, RL ;
Barlow, WE ;
Thompson, RS ;
Mullooly, JP ;
Black, SB ;
Shinefield, HR ;
Vadheim, CM ;
Marcy, SM ;
Ward, JI ;
Wise, RP ;
Wassilak, SG ;
Hadler, SC ;
Swint, E ;
Hardy, JR ;
Payne, T ;
Immanuel, V ;
Benson, P ;
Draket, J ;
Drew, L ;
Mendius, B ;
Ray, P ;
Lewis, N ;
Fireman, BH ;
Jing, J ;
Wulfsohn, M ;
Lugg, MM ;
Osborne, P ;
Rastogi, S ;
Patriarca, P ;
Caserta, V .
PEDIATRICS, 1997, 99 (06) :765-773
[8]   Collecting And Sharing Data For Population Health: A New Paradigm [J].
Diamond, Carol C. ;
Mostashari, Farzad ;
Shirky, Clay .
HEALTH AFFAIRS, 2009, 28 (02) :454-466
[9]   Health care IT collaboration in Massachusetts: The experience of creating regional connectivity [J].
Halamka, J ;
Aranow, M ;
Ascenzo, C ;
Bates, D ;
Debor, G ;
Glaser, J ;
Goroll, A ;
Stowe, J ;
Tripathi, M ;
Vineyard, G .
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION, 2005, 12 (06) :596-601
[10]  
Hornbrook Mark C, 2005, J Natl Cancer Inst Monogr, P12