EORTC QLQ-INFO26: A questionnaire to assess information given to cancer patients a preliminary analysis in eight countries

被引:58
作者
Arraras, Juan Ignacio
Kuljanic-Vlasic, Karin
Bjordal, Kristin
Yun, Young Ho
Efficace, Fabio
Holzner, Bernhard
Mills, Judith
Greimel, Elfriede
Krauss, Oliver
Velikova, Galina
机构
[1] Hosp Navarra, Dept Oncol, Pamplona 31008, Spain
[2] Clin Hosp Ctr Rijeka, Dept Obstet & Gynaecol, Rijeka, Croatia
[3] Univ Oslo, Rikshosp, Palliat Care Res Unit, Radium Hosp Trust, N-0027 Oslo, Norway
[4] EORTC Data Ctr, Qual Life Unit, Brussels, Belgium
[5] Med Unit Innsbruck, Dept Psychiat, Innsbruck, Austria
[6] Canc Res Inst, Clin Trials & Stat Unit, Sutton, Surrey, England
[7] Med Univ Graz, Dept Obstet & Gynaecol, Graz, Austria
[8] Univ Leipzig, D-7010 Leipzig, Germany
[9] St James Hosp, Canc Res UK, Ctr Clin, Leeds LS9 7TF, W Yorkshire, England
关键词
information; cancer; quality of life; questionnaire; oncology; QUALITY-OF-LIFE; BREAST-CANCER; EUROPEAN-ORGANIZATION; NEEDS-ASSESSMENT; CLINICAL-TRIALS; CARE; COMMUNICATION; QLQ-C30; SATISFACTION; INSTRUMENT;
D O I
10.1002/pon.1047
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Information disclosure is a key factor in the support for cancer patients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has developed a questionnaire to evaluate the level of information received by cancer patients at different stages of their disease and treatment: the EORTC QLQ-INFO26. It can be used in clinical practice and research, including clinical trials. The questionnaire was developed following EORTC Quality of Life Group guidelines. The paper presents the data on 133 patients from eight countries. The resulting EORTC QLQ-INFO26 questionnaire includes four sub-scales on information regarding their cancer, medical tests, treatment and other services and several single items. Copyright (c) 2006 John Wiley & Sons, Ltd.
引用
收藏
页码:249 / 254
页数:6
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