The Pediatric Quality of Life Inventory: Measuring Pediatric Health-Related Quality of Life from the Perspective of Children and Their Parents

被引：275

作者：

Varni, James W. ^{[1
,2
]}

Limbers, Christine A. ^{[3
]}

机构：

[1] Texas A&M Univ, Coll Architecture, Dept Landscape Architecture & Urban Planning, College Stn, TX 77843 USA

[2] Texas A&M Univ, Coll Med, Dept Pediat, College Stn, TX 77843 USA

[3] Texas A&M Univ, Coll Liberal Arts, Dept Psychol, College Stn, TX 77843 USA

来源：

PEDIATRIC CLINICS OF NORTH AMERICA | 2009年 / 56卷 / 04期

关键词：

Pediatric Quality of Life Inventory; Health-related quality of life; Pediatrics; Health; Children; GENERIC CORE SCALES; MULTIDIMENSIONAL FATIGUE SCALE; PATIENT-REPORTED OUTCOMES; CEREBRAL-PALSY; PEDSQL(TM) 4.0; SELF-REPORT; END-POINTS; RELIABILITY; VALIDITY; CARE;

D O I：

10.1016/j.pcl.2009.05.016

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

Health-related quality of life (HRQOL) has been recognized as an important outcome, some contend the most important outcome for children's health care interventions. The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, developed to integrate the relative merits of generic and disease-specific approaches. We suggest that part of the process of improving the quality of health care includes measuring HRQOL outcomes from the perspective of children and their parents on a routine basis, consistent with a consumer-based health care system approach.

引用

页码：843 / +

页数：22

共 88 条

[21]

Fayers PM., 2006, QUALITY LIFE ASSESSM

[22] Validation of the German version of the Pediatric Quality of Life Inventory™ (PedsQL™) in childhood cancer patients off treatment and children with epilepsy [J].

Felder-Puig, R ;

Frey, E ;

Proksch, K ;

Varni, JW ;

Gadner, H ;

Topf, R .

QUALITY OF LIFE RESEARCH, 2004, 13 (01) :223-234

[23] Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow transplantation: results of a longitudinal, multi-center study [J].

Felder-Puig, R. ;

di Gallo, A. ;

Waldenmair, M. ;

Norden, P. ;

Winter, A. ;

Gadner, H. ;

Topf, R. .

BONE MARROW TRANSPLANTATION, 2006, 38 (02) :119-126

[24]

Fowler F. J., 1995, IMPROVING SURVEY QUE

[25] Quality of life in Mexican-American children following a weight management program [J].

Fullerton, Ginny ;

Tyler, Chermaine ;

Johnston, Craig A. ;

Vincent, John P. ;

Harris, Gerald E. ;

Foreyt, John P. .

OBESITY, 2007, 15 (11) :2553-2556

[26] Measuring health-related quality of life in children with ESRD: Performance of the generic and ESRD-Specific instrument of the pediatric quality of life inventory (PedsQL) [J].

Goldstein, Stuart L. ;

Graham, Nicole ;

Warady, Bradley A. ;

Seikaly, Mouin ;

McDonald, Ruth ;

Burwinkle, Tasha M. ;

Limbers, Christine A. ;

Vami, James W. .

AMERICAN JOURNAL OF KIDNEY DISEASES, 2008, 51 (02) :285-297

[27] Short-term outcome in the first 10 morbidly obese adolescent patients in the FDA-approved trial for laparoscopic adjustable gastric banding [J].

Holterman, Ai-Xuan ;

Browne, Allen ;

Dillard, Barney E., III ;

Tussing, Lisa ;

Gorodner, Veronica ;

Stahl, Christiane ;

Browne, Nancy ;

Labott, Sue ;

Herdegen, James ;

Guzman, Grace ;

Rink, Andy ;

Nwaffo, Ifeoma ;

Galvani, Carlos ;

Horgan, Santiago ;

Holterman, Mark .

JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION, 2007, 45 (04) :465-473

[28]

[Anonymous], 2002, Bull World Health Organ, V80, P983

[29] MEASUREMENT OF HEALTH-STATUS - ASCERTAINING THE MINIMAL CLINICALLY IMPORTANT DIFFERENCE [J].

JAESCHKE, R ;

SINGER, J ;

GUYATT, GH .

CONTROLLED CLINICAL TRIALS, 1989, 10 (04) :407-415

[30] Children's health care use - A prospective investigation of factors related to care-seeking [J].

Janicke, DM ;

Finney, JW ;

Riley, AW .

MEDICAL CARE, 2001, 39 (09) :990-1001

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