Problems to discuss with cancer patients in palliative care:: a comprehensive approach

被引：44

作者：

Osse, BHP

Vernooij-Dassen, MJFJ

Schadé, E

de Vree, B

van den Muijsenbergh, METC

Grol, RPTM

机构：

[1] Univ Nijmegen, Med Ctr St Radboud, Ctr Qual Care Res HSVWOK229, NL-6500 HB Nijmegen, Netherlands

[2] Univ Amsterdam, Acad Med Ctr, Dept Gen Practice, NL-1105 AZ Amsterdam, Netherlands

[3] Univ Nijmegen, Med Ctr St Radboud, Dept Gen Practice, NL-6500 HB Nijmegen, Netherlands

来源：

PATIENT EDUCATION AND COUNSELING | 2002年 / 47卷 / 03期

关键词：

health services needs and demands; needs-assessment; palliative care; quality of health care; qualitative studies;

D O I：

10.1016/S0738-3991(02)00019-8

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

This study presents a comprehensive overview of the problems patients experience in a palliative phase of cancer. A two-step qualitative method was used: in-depth interviews with patients and relatives (N = 9 patients + 7 relatives), followed by interviews (N = 31 patients + 15 relatives) using a checklist to confirm and complete the picture. Quality of life and quality of care domains were addressed. Patients experienced problems in all of these palliative care domains, although individual patients may have experienced only a few problems. Fatigue, feelings of futility, reluctance to accept help, fear of suffering and the fear that help would not be available if needed, were common problems. Communication problems arose when a grudge against a GP had remained, or because one family member tried to spare the other a confrontation with his/her feelings of fear or grief. A comprehensive checklist of relevant problems is presented. (C) 2002 Elsevier Science Ireland Ltd. All rights reserved.

引用

页码：195 / 204

页数：10

共 46 条

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