Ethical Questions in Medical Electronic Adherence Monitoring

被引:44
作者
Campbell, Jeffrey I. [1 ]
Eyal, Nir [2 ]
Musiimenta, Angella [3 ]
Haberer, Jessica E. [4 ,5 ]
机构
[1] Harvard Univ, Sch Med, Ctr Bioeth, Boston, MA USA
[2] Harvard Univ, TH Chan Sch Publ Hlth, Dept Global Hlth & Populat, Boston, MA 02115 USA
[3] Mbarara Univ Sci & Technol, Dept Informat Technol, Mbarara, Uganda
[4] Massachusetts Gen Hosp, Ctr Global Hlth, Boston, MA 02114 USA
[5] Harvard Univ, Sch Med, Dept Med, Boston, MA USA
关键词
electronic adherence monitoring; patient adherence; privacy; confidentiality; personal autonomy; research ethics; ANTIRETROVIRAL THERAPY; OBJECTIVE MEASUREMENT; CARE; ACCEPTABILITY; FEASIBILITY; PERCEPTIONS; ADULTS;
D O I
10.1007/s11606-015-3502-4
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Electronic adherence monitors (EAMs) record and report an array of health behaviors, ranging from taking daily medications to wearing medical devices. EAMs are utilized in research worldwide and are being investigated for clinical use. However, there is also growing popular concern about the extent to which electronic devices may be used to monitor individuals, including allegations in the media that EAMs represent a move towards "Big Brother" in medicine. Here, we highlight the unique benefits as well as the potential ethical challenges that electronic adherence monitoring generates. These challenges surround autonomy, privacy and confidentiality, trust, and ancillary care obligations. We describe key questions within each of these domains that warrant further investigation, and present potential solutions to many of the concerns raised.
引用
收藏
页码:338 / 342
页数:5
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