Uncovering the limits of patient-centeredness: Implementing a self-management trial for chronic illness

被引:100
作者
Rogers, A [1 ]
Kennedy, A
Nelson, E
Robinson, A
机构
[1] Univ Manchester, Natl Primary Care Res & Dev Ctr, Manchester M13 9PL, Lancs, England
[2] Hope Hosp, Salford M6 8HD, Lancs, England
关键词
self-management; chronic disease; patient-centeredness;
D O I
10.1177/1049732304272048
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Research evaluating self-management of chronic conditions points to the effectiveness of interventions' changing the health behavior of individuals. However, we know little about how self-management is negotiated within health services. The authors designed a qualitative investigation to illuminate the quantitative findings of a randomized controlled trial (RCT) of a self-management program for people with inflammatory bowel disease. They conducted in-depth interviews with physicians and patients, and qualitative analysis illuminated the nature of doctor-patient encounters and possible reasons for lack of change in patient satisfaction with the consultation. The findings suggest that factors inhibiting effective patient-centered considerations include failure of physicians to incorporate expressed need relevant to people's self-management activities fully interpretation of self-management as compliance with medical instructions, and the organization of out patients' clinics. Giving attention to these barriers might maximize the opportunities for patient self-management of chronic illness based oil a therapeutic alliance with health care professionals.
引用
收藏
页码:224 / 239
页数:16
相关论文
共 37 条
[1]   Primary care in the United States - Innovations in primary care in the United States [J].
Bodenheimer, T .
BMJ-BRITISH MEDICAL JOURNAL, 2003, 326 (7393) :796-798
[2]  
Bower P, 2001, BRIT J GEN PRACT, V51, P838
[3]  
Bradley F, 1999, BMJ-BRIT MED J, V318, P711
[4]  
*BRIT SOC GASTR, 1996, CLIN PRACT GUID INFL
[5]   Framework for design and evaluation of complex interventions to improve health [J].
Campbell, M ;
Fitzpatrick, R ;
Haines, A ;
Kinmonth, AL ;
Sandercock, P ;
Spiegelhalter, D ;
Tyrer, P .
BRITISH MEDICAL JOURNAL, 2000, 321 (7262) :694-696
[6]   Concerns of patients with inflammatory bowel disease - A review of emerging themes [J].
Casati, J ;
Toner, BB ;
de Rooy, EC ;
Drossman, DA ;
Maunder, RG .
DIGESTIVE DISEASES AND SCIENCES, 2000, 45 (01) :26-31
[7]   Management of chronic disease by practitioners and patients: are we teaching the wrong things? [J].
Clark, NM ;
Gong, M .
BMJ-BRITISH MEDICAL JOURNAL, 2000, 320 (7234) :572-+
[8]   Expert patients usher in a new era of opportunity for the NHS [J].
Donaldson, L .
BRITISH MEDICAL JOURNAL, 2003, 326 (7402) :1279-1279
[9]  
Erwin J, 1996, BRIT MED J, V312, P617
[10]   SELF-CARE - A HEALTH DIARY STUDY [J].
FREER, CB .
MEDICAL CARE, 1980, 18 (08) :853-861