The MacNew Heart Disease Health-related Quality of Life instrument: A summary

被引：207

作者：

Höfer S. ^{[1
,5
]}

Lim L. ^{[2
]}

Guyatt G. ^{[3
]}

Oldridge N. ^{[4
]}

机构：

[1] Dept. of Med. Psychol./Psychotherapy, University of Innsbruck, Innsbruck

[2] Natl. Ctr. for Epidemiol./Pop. Hlth., Australian National University, Canberra, ACT

[3] Department of Clinical Epidemiology, McMaster University, Hamilton, Ont.

[4] Center for Urban Population Health, University of Wisconsin-Milwaukee, Milwaukee, WI

[5] Department of Psychology, Royal College of Surgeons in Ireland, Dublin

来源：

Health and Quality of Life Outcomes | / 2卷 / 1期

关键词：

Cardiac Rehabilitation; Minimal Important Difference; Kansas City Cardiomyopathy Questionnaire; Seattle Angina Questionnaire; HRQL Instrument;

D O I：

10.1186/1477-7525-2-3

中图分类号：

学科分类号：

摘要：

Background: The measurement of health, the effects of disease, and the impact of health care include not only an indication of changes in disease frequency and severity but also an estimate of patients' perception of health status before and after treatment. One of the more important developments in health care in the past decade may be the recognition that the patient's perspective is as legitimate and valid as the clinician's in monitoring health care outcomes. This has lead to the development of instruments to quantify the patients' perception of their health status before and after treatment. Methods: We review evidence supporting the measurement properties of the MacNew Heart Disease Health-related Quality of Life [MacNew] Questionnaire which was designed to evaluate how daily activities and physical, emotional, and social functioning are affected by coronary heart disease and its treatment. Results: Reliability was demonstrated by using internal consistency and the intraclass correlation coefficients for the three domains in the Dutch, English, Farsi, German, and Spanish versions of the MacNew. With internal consistency and intraclass correlation coefficients =>0.73, reliability is high. Validity of the MacNew was examined with factor analysis and three core underlying factors, physical, emotional, and social, were identified, explaining 63.0 - 66.5% of the observed variance and replicated in the translations with psychometric data. Construct validity of the MacNew was further demonstrated by extensive substantiation of the logical relationships, defined a priori, between items and other comparison tools. The MacNew is responsive and sensitive to changes in HRQL following various interventions for patients with heart disease with 11 of 13 effect size statistics >0.80. Taking an average of 10 minutes or less to complete, the respondent-burden for the MacNew is low and its acceptability is demonstrated by response rates of over 90%. Normative data are available for patients with myocardial infarction, angina, and heart failure in the English version. Conclusion: The MacNew may be a valuable tool for assessing and evaluating health related quality of life in patients with heart disease. © 2004 Hofer et al; licensee BioMed Central Ltd.

引用

页数：8

共 44 条

[41] Jaeschke R., Singer J., Guyatt G.H., Ascertaining the minimal clinically important difference, Cont. Clin. Trials, 10, pp. 407-415, (1989)
[42] Oldridge N., Perkins A., Marchionni N., Fumagalli S., Fattirolli F., Guyatt G., Number needed to treat in cardiac rehabilitation, J. Cardiopulm. Rehabil., 22, pp. 22-30, (2002)
[43] Laupacis A., Feeny D., Detsky A.S., Tugwell P.X., Tentative guidelines for using clinical and economic evaluations revisited, Can. Med. Assoc. J., 148, pp. 927-929, (1993)
[44] Smith R.F., Johnson G., Ziesche S., Bhat G., Blankenship K., Cohn J.N., Functional capacity in heart failure, Circulation, 87, (1993)

← 1 2 3 4 5 →